Longwoods Healthcare Services Radio

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Longwoods provides audio versions of our events, essays, and case studies, all related to best practices, policy, innovations and opinions in Healthcare Services.

  1. Oct 22

    Building on Progress: The Patient Perspective

    A discussion on Canada's national strategy on drugs for rare diseases and what does it really mean to live with a rare disease in Canada Featuring: Dr. Ryan Thomas: Dr. Thomas is a family physician and Clinical Associate at UHN's Elisabeth Raab Neurofibromatosis Clinic. He is also an Adjunct Lecturer at the University of Toronto Department of Family & Community Medicine, and a person living with neurofibromatosis type 1, or NF1.   Alice Williams: Alice is a healthcare advocate, a caregiver, co-founder of the Ontario Rare Action Group, and Canada chapter director of the Wilson Disease Association. Alice brings extensive experience supporting and advocating alongside people and families affected by rare disease.   and moderated by: Dr. Homira Osman: Dr. Osman is Vice President of Research, Public Policy & Programs at Muscular Dystrophy Canada, where she leads national efforts to transform the landscape of neuromuscular research, care, and policy in Canada. She is also the co-lead investigator for the Steering Committee Co-chair of the Neuromuscular Disease Network for Canada, focusing on strategy, leadership, and the integration of patient and clinician perspectives across research, clinical care, and policy.   The production of this podcast was supported by Alexion Canada   Additional Resources Longwoods Leadership Discussion Building on Progress: Charting the Future of Canada's Rare Disease Strategy The National Strategy for Drugs for Rare Diseases - Canada.ca

  2. Mar 12

    Connected Care in Action Episode 5 Testing What’s Possible Projectathons and the Future of Interoperability

    Canada’s progress toward a fully connected health system is measured not just in policies and plans but in how systems actually work together. Projectathons are where that vision is put to the test – structured, non-competitive events that bring together vendors, jurisdictions, and clinical leaders to validate whether digital health solutions can exchange information securely and consistently across the country. A prime example of a Projectathon tested standard is the Pan-Canadian Patient Summary (PS-CA) specification, which defines a common way to capture and share essential health information, medications, allergies, immunizations, and more, so it can travel with patients throughout their care journey. By testing against PS-CA, vendors and jurisdictions prove their systems can create and consume a standardized summary directly within clinical workflows, ensuring that vital health information is available whenever and wherever it is needed. This session will explore how Projectathons accelerate standards adoption, identify issues early, and give governments, vendors, and providers confidence that solutions are ready for care settings. We’ll reflect on lessons learned from Canadian and international events and preview what’s next, including the upcoming Canadian Projectathon. It’s a fitting finale: a look back at progress and a look forward to how innovation is tested, refined, and accelerated in the real world. Featured Speakers: Allana Cameron, Product Director for the Patient Summary, Canada Health Infoway, Daniel Berezeanu, Product Manager, IHE Catalyst, Brandon Blanck, President and CEO, Healthquest and Moderator: Edwin White Chacon, Manager, Enablement Services, Canada Health Infoway

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Longwoods provides audio versions of our events, essays, and case studies, all related to best practices, policy, innovations and opinions in Healthcare Services.

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