Dying to Tell You

Jamesy Media, LLC

We are all born with an expiration date. Palliative Care Chaplain Cody Hufstedler sits down with people who are living with serious illness for intimate, one-on-one conversations that explore the challenges, insights and, yes, joys of facing mortality. Far from morbid, these episodes dealing with hospice, healthcare, end-of-life, illness, and death are deeply alive explorations of life’s greatest mysteries and windows into the wonderful, human richness of living.

  1. When the Zebra Catches You: Living with Rare Cancer at 28

    JAN 22

    When the Zebra Catches You: Living with Rare Cancer at 28

    “I kept expecting to die. But I haven’t died yet...there’s still time left and it's navigating how and what space do you live in every day.” At 26, Rachel was living her dream life in Chicago. She’d moved from her small town Texas roots and was young, independent, and thriving in the city. But mysterious symptoms that began in college refused to go away. After being dismissed by doctor after doctor—told it was anxiety, IBS, or nothing at all—Rachel found herself in crisis. Unable to work, she packed a suitcase and flew home to Texas, putting her Chicago life on pause. What followed was a whirlwind of appointments that led to an unexpected discovery: stage 4 metastatic neuroendocrine cancer, a rare “old person’s cancer” that had already spread throughout her body. The diagnosis was devastating but also, strangely, a relief—finally someone believed her. Now 28, Rachel has moved back to Texas permanently for her family’s support, undergone major surgery, and is navigating what it means to live with a slow-growing but incurable cancer that gives her a prognosis of 15 to 20 years. In this episode, Rachael and Cody explore what it means to have a terminal diagnosis that still puts a lot of life ahead of you, how to live a full life with a chronic and fatal condition, even how to navigate dating and finding love (Rachael’s story of how her girlfriend showed up for her on their third date is so…dang…sweet). Rachael also shares practical advice for supporting cancer patients without making them comfort you, discusses her complicated relationship with the evangelical Christianity of her youth, and explains why the zebra is the symbol for this rare disease. It’s all a lovely reminder that you don’t need to be dying to live intentionally, that advocating for yourself matters even when no one believes you, and that there’s always a lot more life to live.

    1h 10m
  2. "100 More Steps" : Endurance, Acceptance, and Brain Cancer

    JAN 8

    "100 More Steps" : Endurance, Acceptance, and Brain Cancer

    “I kept saying...what is the best possible outcome right now?” Amanda is a 43-year-old ultra endurance athlete who began experiencing strange symptoms in 2024: pressure headaches, déjà vu, vision problems, and eventually bizarre behaviors like eating off an upside-down plate and walking out of her shoe without noticing. After an urgent care doctor dismissed her symptoms as TMJ (lockjaw?!), her leg buckled in her own bedroom, sending her to the emergency room where an MRI revealed the truth: glioblastoma, one of the most aggressive forms of brain cancer. Amanda's journey from diagnosis through an eight-hour awake craniotomy to her current life 16 months post-diagnosis is marked by perseverance and not anger or fear…but love. Drawing on her experience as an ultra endurance athlete—particularly a brutal 36-hour race in Stratton, Vermont, where she trained in relentless rain and mud—Amanda applies the same mindset that got her through the worst physical challenges of her life to this new reality. Today, she jokes in her hardest hours that “ In this episode, Amanda and Cody discuss the immediate acceptance she felt upon diagnosis, the "scanxiety" she experiences every 10 weeks, the heartbreak of losing friends with glioblastoma , and why she chose not to see her cancer as an enemy. Amanda has made it past the 16-month median survival time for glioblastoma and is currently training for the same endurance event she was preparing for when diagnosed, hoping to raise $5,000 for brain cancer research through Stash Strong. (You can help support Amanda at that link!) Amanda's athletic background provides a unique lens for understanding resilience, and her honest discussion of both the joyful and devastating aspects of her journey offers a masterclass in living fully while facing an uncertain future.

    1h 9m
4.8
out of 5
50 Ratings

About

We are all born with an expiration date. Palliative Care Chaplain Cody Hufstedler sits down with people who are living with serious illness for intimate, one-on-one conversations that explore the challenges, insights and, yes, joys of facing mortality. Far from morbid, these episodes dealing with hospice, healthcare, end-of-life, illness, and death are deeply alive explorations of life’s greatest mysteries and windows into the wonderful, human richness of living.

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