About IBD focuses on issues vital to people living with Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease). Patients, physicians, and caregivers give their opinions and advice on a variety of topics including nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
The Snuggles Are the Thing
How do your pets help you with your IBD? I speak to Meredith Mangold, "The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colitis, which progressed into a rare complication called toxic megacolon. She eventually needed colectomy surgery, and has since been diagnosed with other immune-mediated conditions. Her two dogs, have become a big part of her advocacy work, and they help her manage the pain and loneliness that come with chronic illnes
Making a Plan for Back to School With Dr Brad Jerson
The back to school period is already a time of so much change but once again in this pandemic, parents and school systems are also facing difficult choices. The experiences of families during the pandemic has been diverse, which means that individual needs need to be addressed. Dr Brad Jerson, Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s, puts some framing around these issues and how we might approach them.
A Wee Spark of Inspiration With Author Kathleen Nicholls
This is the second part of my conversation with Kathleen Nicholls, author of "Go Your Crohn Way” and "My Flare Lady.” Hear the first part in Episode 97.
We talk about how to answer when people ask us how we’re doing and how providers can ask patients about whether or not they want to pursue parenthood. Kathleen also gives blogging tips, including a hard truth, and offers advice to anyone who is newly diagnosed. However, I think her wisdom is important for long-term patients as well.
Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls
Life with IBD brings challenges and many life changes but it can also sometimes bring unexpected opportunities.
Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: a handbook for today's (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She started a blog as a way to process her disease journey. She was stunned when publishers became interested. Two books later, she shares the lessons she learned along the way.
Fatherhood and IBD With Jordan McConnell
The patient advocacy space is lacking the voices of men and especially men of color. Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually discharged due to his Crohn’s disease. His disease journey showed him that he needed to be the change and he developed his podcast and his brand to support men and the larger IBD community
Kelly Owens: Vagus Nerve Girl
What is the next innovation in the treatment of inflammatory bowel disease (IBD)? IBD is a complicated disease to treat and can bring complications and other, related conditions. For Kelly Owens, who lives with Crohn’s disease, bioelectric medicine has bumped her into remission and changed her life in several ways. Today she goes by "Vagus Nerve Girl” because she had a device implanted in her chest that stimulates her vagus nerve. For her, this treatment has been a resounding success.
Learn from the Expert
Amber is so well versed in IBD. She is an expert brings such wonderful information and knowledge to every episode. What a supportive community she has created and a wonderful resource for IBD.
It was wonderful to meet you Amber, at Connecticut Children’s Medical Center College Night. Thank you for sharing your experience and insight. I enjoyed the latest episodes here and look forward to listening to many more. Very personal and meaningful 😊
Relatable and informative
Amber always has relevant topics and guests talking about important things for IBD patients. She’s always relatable and makes great content FOR patients not about them.