35 episodes

Bladder Cancer Matters is the podcast for, by and about the bladder cancer community. Host Rick Bangs interviews interesting guests from the bladder cancer community, including patients, survivors, advocates, medical professionals, researchers, caregivers and more. It is brought to you by the Bladder Cancer Advocacy Network.

Bladder Cancer Matters Bladder Cancer Advocacy Network

    • Health & Fitness
    • 5.0 • 13 Ratings

Bladder Cancer Matters is the podcast for, by and about the bladder cancer community. Host Rick Bangs interviews interesting guests from the bladder cancer community, including patients, survivors, advocates, medical professionals, researchers, caregivers and more. It is brought to you by the Bladder Cancer Advocacy Network.

    Being a Bladder Cancer Beacon of Hope with Karen Godfrey, Part II

    Being a Bladder Cancer Beacon of Hope with Karen Godfrey, Part II

    In Episode 29 of Bladder Cancer Matters, host Rick Bangs offers Part II of the three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group and has been active with BCAN since the very beginning.
    Rick and Karen talk about how she started the BCAN Inspire community and how the group has grown to more than 53,000 people today, how she deals with loss when a member of her group passes away, and the advice that she would give to someone who is considering starting a bladder cancer support group in their own community.
    Karen and Rick also talk about effective ways to be your own advocate with doctors and other medical professionals.
    You can listen to Part 1 of Rick's conversation with Karen here and stay tuned for Part III of this special three-part podcast.
    Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
    Disclaimer: The views and opinions expressed in this podcast are those of the speakers and guests and do not necessarily reflect the views or positions of the Bladder Cancer Advocacy Network.

    • 17 min
    • video
    Being a Bladder Cancer Beacon of Hope with Karen Godfrey

    Being a Bladder Cancer Beacon of Hope with Karen Godfrey

    In Episode 29 of Bladder Cancer Matters, host Rick Bangs begins a three-part podcast with long time patient advocate and 2022 Beacon of Hope Award winner, Karen Godfrey. Karen is the organizer of the Southwest Florida Bladder Cancer Support Group.
    Rick and Karen talk about her initial bladder cancer diagnosis in 2003 and how there was little to no information available about having her bladder removed. Karen was faced with some difficult decisions like choosing a urinary diversion, and unfortunately, her diagnosis came a full two years before BCAN was founded.
    Karen ended up choosing an Indiana Pouch, a decision that she is happy with 19 years later and she explains what life has been like living with that urinary diversion.
    Stay tuned for Part II of this special three-part podcast and never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.

    • 26 min
    • video
    Bladder Cancer Can be Painful, Especially Financially with Cindy Lawson DeVore

    Bladder Cancer Can be Painful, Especially Financially with Cindy Lawson DeVore

    In Episode 28 of Bladder Cancer Matters, host Rick Bangs talks with bladder cancer patient Cindy Lawson DeVore, who gives her unique perspective on her journey with the disease.  Cindy has been a patient, her father is a retired urologist, and Cindy's mom was diagnosed with bladder cancer a short two months after she was.  She has seen bladder cancer from multiple angles.
    Cindy also speaks openly about the financial strain that bladder cancer takes, especially for those who require routine surveillance, including some expensive procedures.
    Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.
     

    • 36 min
    Tom Faced Bladder Cancer and Pancreatic Cancer at the Same Time

    Tom Faced Bladder Cancer and Pancreatic Cancer at the Same Time

    Tom had a history of cancer in his family, but never expected what happened to him. After not feeling well for a while, Tom was diagnosed with both pancreatic cancer and bladder cancer. In this episode, he talks with BCAN associate Joslyn Brown about his two cancer journeys and offers an optimistic and uplifting perspective, particularly about his bouts with bladder cancer.
    Tom is also active with BCAN's Survivor to Survivor program matching newly diagnosed bladder cancer patients with trained volunteers who lend a sympathetic ear as well as what BCAN has meant to him.

    • 24 min
    Part 2 of Quality of Life After Bladder Removal Surgery with Dr. Bernard Bochner

    Part 2 of Quality of Life After Bladder Removal Surgery with Dr. Bernard Bochner

    In Part 2 of two part Episode 24 of Bladder Cancer Matters, host Rick Bangs interviews Dr. Bernard Bochner about the findings from a quality of life survey of bladder cancer patients after they have their bladders removed (radical cystectomy).
    Rick and Dr. Bochner discuss life after a radical cystectomy and they also talk about:
     
    How recovery from bladder removal surgery can be impacted by how healthy patients were leading up to the surgery How the first six weeks after the surgery can be very difficult for patients That some patients experience a drop off in sexual function, both men and women What other factors of quality of life Dr. Bochner's patient survey addressed How bladder removal surgery can impact patients' physical and mental health Click here to listen to Part 1 of Rick's conversation with Dr. Bochner.
     

    • 32 min
    Karen's Story: Bladder Cancer Nurse, Patient and Caregiver

    Karen's Story: Bladder Cancer Nurse, Patient and Caregiver

    In this very special episode of Bladder Cancer Matters, host Rick Bangs talks with Karen Sachse.  Karen has a one-in-a-million perspective on bladder cancer because she is an oncology nurse, a nurse navigator, a bladder cancer survivor and was a caregiver to her husband, Roger, who passed away from the disease.  She is also a very active patient advocate with the Bladder Cancer Advocacy Network.
    Rick and Karen talk about:
    Her bladder cancer diagnosis and treatment Caring for her husband when he got bladder cancer How her late husband benefited from BCAN’s programs and services Why she participates in the Walks to End Bladder Cancer and thinks that others should too How to get involved with BCAN Never miss an episode of Bladder Cancer Matters by searching for it on your favorite podcasting platform and clicking the "subscribe" button.

    • 32 min

Customer Reviews

5.0 out of 5
13 Ratings

13 Ratings

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