83 episodes

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

Celiac Straight Talk Beyond Celiac

    • Health & Fitness
    • 4.3 • 26 Ratings

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

    83: Talking About Celiac with Liz Purvis from @yeet.that.wheat

    83: Talking About Celiac with Liz Purvis from @yeet.that.wheat

    Liz (@yeet.that.wheat) has been living with celiac disease for 4 years and creates content focusing on health equity, advocacy, and living a fulfilling gluten free life. She uses her experience as a Black woman with celiac to talk about being gluten free through an intersectional lens. Through social media, she aims to create a supportive community for folks who are navigating living gluten free through educational posts, recipes, product recommendations, restaurant reviews, travel, tips and tricks, and of course, memes. 
    In this casual conversation, Liz chats about her jump to social media upon her celiac disease diagnosis, and how she hopes her page can help others find community while experiencing a chronic condition. Liz also shares an exciting, nationwide project she is working on. You can follow Liz on Instagram, Tiktok, and Facebook, and soon to be Youtube!
    Thanks so much to Takeda for sponsoring this episode of Celiac Straight Talk.
    To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/

    • 56 min
    82: Minisode with Alice Bast and Casey Walters

    82: Minisode with Alice Bast and Casey Walters

    In this minisode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast speaks with Casey Walters about the challenges of having a young child with celiac disease.
    Alice’s personal journey as a celiac disease survivor and champion for research in this field, coupled with her prior experience of more than two decades in healthcare business development and marketing, taught her that patients need to be educated and empowered with solid information in order to make decisions about their desired health outcomes.

    Casey is a PR professional with experience working in the consumer technology space handling media relations, message and platform development, event management and trade show execution, product launches, content creation and development of traditional and social media relations campaigns. Her experience spans a wide variety of consumer and technology brands.
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 
     

    • 15 min
    81: A 90s Retrospective with Amy Ratner

    81: A 90s Retrospective with Amy Ratner

    Amy Ratner joined Beyond Celiac in 2016 as the medical and science news analyst to provide coverage of celiac disease research news. She has extensive experience reporting on and writing about celiac disease. She was editor-in-chief, associate editor and contributing editor for 23 years at Gluten-Free Living magazine, where her work touched on all topics related to celiac disease, including lifestyle, diet, nutrition, and medical and research developments.
    When Amy’s daughter was diagnosed with celiac disease as a toddler 31 years ago, she was set on a path that combined her commitment to improving life for those with celiac disease with her journalism training. Tune in today to hear Amy and Social Media Coordinator Lauren Wallach discuss how far celiac disease research and access to gluten-free food has come in the last two decades!
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 42 min
    80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow

    80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow

    In winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, Dr. Silberg and Dr. Dubow unpack their backgrounds and what’s in store for Beyond Celiac research in 2024, as well as a Q&A segment about celiac disease.
    Discussions include topics such as the neurological impact of celiac disease, explanations of grant funding, and clinical trials for treatments.
    This event was possible thanks to our sponsor, Takeda, and the ILLUMINATE trial. Learn more at the Illuminate Study website.
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 59 min
    79: New Insights into How Gluten Causes Damage with Dr. Arnold Han

    79: New Insights into How Gluten Causes Damage with Dr. Arnold Han

    Arnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han’s innovative research has found more precise ways that gluten sets off damage to the intestine in those who have celiac disease, which he believes could help in the development of innovative approaches to finding a treatment. In our discussion, Han reveals what he’s discovered so far through this research and where he hopes it leads in the future.
    Special thanks to our friends at Crunchmaster Crackers for sponsoring this event!
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 59 min
    78: Interview with Jackson Dunckel

    78: Interview with Jackson Dunckel

    In this episode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast interviews Jackson Dunckel, CFO of AMG, an eco-friendly manufacturing company. Jackson shares his celiac story in a candid conversation, from his delayed diagnosis in 2002 to managing his health today. In particular, Jackson shares his perspective as a long-time diagnosed man managing this serious genetic autoimmune disease.

    • 26 min

Customer Reviews

4.3 out of 5
26 Ratings

26 Ratings

miller,ak ,

Good info. Poor quality

Helpful with managing celiac disease. I do listen to most of the episodes other than book club ones. The only problem is the audio is so poor for a podcast which is probably low budget but can be hard to listen to as an avid podcast listener. It needs higher quality then would be 5 stars.

starryeyedmom ,

Just diagnosed

Great program! I need more of these informative episodes. My doctors haven’t provided me much insight into this condition and I’m so eager to figure out how to improve my health.

doctormomofCDkid ,

Inappropriate bashing of Medicine

I’m a physician and mother to a newly diagnosed celiac disease in my 10 year old. I was looking for some more resources and wisdom from other people’s experience with the disease. I could not even get through the first episode due to the venom directed toward the medical community in the first interview. Celiac is an elusive diagnosis for many people as they don’t have the “typical” symptoms. By the tone of the angry mother in the first interview, I suspect the specialist didn’t so much “abandon” the patient as much as they fired the mom. For my child, the diagnosis occurred over 6 weeks with collaboration with myself, my daughter’s primary care physician, and the pediatric gastroenterologist. The host of the podcast has no experience with celiac aside from himself having a chronic illness affected by diet. There is a need for a sound medical, nutritional, and lifestyle informational podcast for celiac but if the first episode is indicative of what future podcasts have to offer, this is not what you will find here...

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