40 episodes

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

Celiac Straight Talk Beyond Celiac

    • Health & Fitness
    • 4.3 • 20 Ratings

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

    40: Navigating Friendships with Celiac Disease

    40: Navigating Friendships with Celiac Disease

    When it comes to getting a new diagnosis, friends can be your greatest ally or a crushing loss if they don’t understand your new needs. Our Reach Beyond Celiac Ambassadors discuss the ins and outs of how celiac disease can affect a friendship, old or new. 
     
    Note: at timestamps 17:14 and 18:33, the term “cross-contamination” should be “cross-contact.”

    • 41 min
    39: Jennifer Sealey-Voyksner, Co-Founder of ImmunogenX

    39: Jennifer Sealey-Voyksner, Co-Founder of ImmunogenX

    In this episode we sit down with Jennifer Sealey-Voyksner, co-founder and chief scientific officer at ImmunogenX, a biotech company developing latiglutenase, a potential treatment for celiac disease. Jennifer, who has celiac disease herself, discusses her journey to diagnosis, why a treatment beyond the diet is important, and how latiglutenase works.
     
    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

    • 25 min
    38: Parenting and Celiac Disease

    38: Parenting and Celiac Disease

    Even without an autoimmune disease, parenting can be tough. But if you’re a parent of a child with a food restriction like the gluten-free diet, this episode is for you. It features our Reach Beyond Celiac Ambassadors explaining their approach to raising children with celiac disease, including planning family vacations, becoming an advocate for their kid’s health, and how to get your little one the care and food they need, whether it’s at home, at school, or at a friend’s house. 

    • 38 min
    37: Biggest Changes in the Celiac Disease World, ft. Erica Dermer of Celiac and the Beast

    37: Biggest Changes in the Celiac Disease World, ft. Erica Dermer of Celiac and the Beast

    Listen in to this thoughtful conversation between Amy Ratner of Beyond Celiac and Erica Dermer of Celiac and the Beast on some of the biggest changes in the celiac disease world since the 1990s, when Amy’s daughter was diagnosed. The pair also speculate about what the next decade or two might hold for our community.
     
    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/survey

    • 1 hr 1 min
    36: Child Care with CHOP Celiac Center

    36: Child Care with CHOP Celiac Center

    In this episode we sit down with Lisa Fahey, MD and Betsy Turner, PhD from the Children's Hospital of Philadelphia (CHOP) to discuss pediatric care of celiac disease. The conversation covers topics like introducing gluten to babies at risk, helping children cope with their diagnosis, transitioning to adult care and so much more! Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast

    • 58 min
    35: Family Matters, part 2

    35: Family Matters, part 2

    In this episode our Reach Beyond Celiac Ambassadors continue their conversation on how a celiac disease diagnosis can affect family relationships and give tips for eating together when some family members just don’t seem to understand your diagnosis.
    Today's episode is brought to you by Solutions for Celiac. Join their clinical trial currently researching a study medication to treat symptoms commonly suffered by celiac disease patients who are still experiencing symptoms while on a gluten-free diet. See if you qualify: www.solutionsforceliac.com/podcast

    • 27 min

Customer Reviews

4.3 out of 5
20 Ratings

20 Ratings

miller,ak ,

Good info. Poor quality

Helpful with managing celiac disease. I do listen to most of the episodes other than book club ones. The only problem is the audio is so poor for a podcast which is probably low budget but can be hard to listen to as an avid podcast listener. It needs higher quality then would be 5 stars.

starryeyedmom ,

Just diagnosed

Great program! I need more of these informative episodes. My doctors haven’t provided me much insight into this condition and I’m so eager to figure out how to improve my health.

doctormomofCDkid ,

Inappropriate bashing of Medicine

I’m a physician and mother to a newly diagnosed celiac disease in my 10 year old. I was looking for some more resources and wisdom from other people’s experience with the disease. I could not even get through the first episode due to the venom directed toward the medical community in the first interview. Celiac is an elusive diagnosis for many people as they don’t have the “typical” symptoms. By the tone of the angry mother in the first interview, I suspect the specialist didn’t so much “abandon” the patient as much as they fired the mom. For my child, the diagnosis occurred over 6 weeks with collaboration with myself, my daughter’s primary care physician, and the pediatric gastroenterologist. The host of the podcast has no experience with celiac aside from himself having a chronic illness affected by diet. There is a need for a sound medical, nutritional, and lifestyle informational podcast for celiac but if the first episode is indicative of what future podcasts have to offer, this is not what you will find here...

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