21 episodes

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

Celiac Straight Talk Beyond Celiac

    • Nutrition
    • 4.2, 18 Ratings

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

    Episode 21: Michael Savett from the Gluten Free Philly Blog

    Episode 21: Michael Savett from the Gluten Free Philly Blog

    We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.

    • 27 min
    Episode 20: Asia's Story

    Episode 20: Asia's Story

    Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease. 

    • 11 min
    Episode 19: Living With Celiac Disease Part 2

    Episode 19: Living With Celiac Disease Part 2

    Part 2
    On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists.
    Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.
    Listen as the patient panel share their stories about what its like living with celiac disease.
    Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.
    Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.

    • 33 min
    Episode 18: Living with Celiac Disease

    Episode 18: Living with Celiac Disease

    On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists.
    Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease.
    Listen as the patient panel share their stories about what its like living with celiac disease.
    Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease.
    Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.

    • 30 min
    Episode 17: June Book Club Discussion

    Episode 17: June Book Club Discussion

    In this podcast, the Beyond Celiac book club (Claire, Amy Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here. 

    • 41 min
    Episode 16: Beyond Celiac Book Club Discussion

    Episode 16: Beyond Celiac Book Club Discussion

    This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!

    • 32 min

Customer Reviews

4.2 out of 5
18 Ratings

18 Ratings

miller,ak ,

Good info. Poor quality

Helpful with managing celiac disease. I do listen to most of the episodes other than book club ones. The only problem is the audio is so poor for a podcast which is probably low budget but can be hard to listen to as an avid podcast listener. It needs higher quality then would be 5 stars.

starryeyedmom ,

Just diagnosed

Great program! I need more of these informative episodes. My doctors haven’t provided me much insight into this condition and I’m so eager to figure out how to improve my health.

doctormomofCDkid ,

Inappropriate bashing of Medicine

I’m a physician and mother to a newly diagnosed celiac disease in my 10 year old. I was looking for some more resources and wisdom from other people’s experience with the disease. I could not even get through the first episode due to the venom directed toward the medical community in the first interview. Celiac is an elusive diagnosis for many people as they don’t have the “typical” symptoms. By the tone of the angry mother in the first interview, I suspect the specialist didn’t so much “abandon” the patient as much as they fired the mom. For my child, the diagnosis occurred over 6 weeks with collaboration with myself, my daughter’s primary care physician, and the pediatric gastroenterologist. The host of the podcast has no experience with celiac aside from himself having a chronic illness affected by diet. There is a need for a sound medical, nutritional, and lifestyle informational podcast for celiac but if the first episode is indicative of what future podcasts have to offer, this is not what you will find here...

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