Dementia Decoded

Jennifer Fink | Caregiving Strategist & Host of Dementia Decoded Dementia is confusing. We make it m

Stop guessing and start leading. Caring for a loved one with dementia or Alzheimer’s shouldn't feel like a constant state of crisis. In Dementia Decoded, host Jennifer Fink transforms her two decades of caregiving experience into a masterclass for the working family caregiver. After eight years as Fading Memories, we have evolved to provide you with more than just stories—we provide a strategy. As a caregiving strategist and advocate for AARP and the Alzheimer’s Association, Jennifer decodes the medical jargon, communication hurdles, and emotional toll of the disease to help you advocate for your loved one without losing yourself in the process. Each week, we dive into: Caregiving Strategies: Practical tools for managing daily care and long-term planning. Brain Health: Understanding the science behind the "why" of dementia. Advocacy & Support: Navigating the healthcare system and finding your village. The "Real Talk": Permission to laugh through the absurdity and heal through honest conversation. Experience matters. Strategy wins. Laughter heals. Whether you are in the first stages of a diagnosis or deep in the trenches, it’s time to turn the light on. Welcome to Dementia Decoded.

  1. 3d ago

    Wisdom-Based Caregiving - Finding Strength in the Broken Places

    When the clinical checklists and "evidence-based" advice fall short, we must turn toward wisdom-based caregiving to navigate the profound silence that follows a long goodbye. If you are struggling with finding strength in the broken places of your life after a loss, this conversation offers a new way to inhabit your grief without being consumed by it. In this episode, Jen Fink sits down with philosopher and author Thomas Attig to explore how we transition from a world that felt like a "solo game" of caregiving into a new reality. Thomas, known for his works The Heart of Grief and Seeking Wisdom in Death’s Shadows, reframes bereavement as an active, courageous process of "relearning how to live in the world." In this episode, we dive into: The "Solo Game": Acknowledging the profound isolation of dementia caregiving and how families can work better as teams.Problems vs. Mysteries: Why an "engineering mindset" won't work with grief. Learn why loss is a mystery to be inhabited, not a problem to be "solved" or "closed."From Grief to Gratitude: Practical ways to harvest memories and move from the pain of absence to the comfort of lasting love.Fragile Humanity: Thomas shares his signature wisdom on finding peace with being small, imperfect, and uncertain in a complex world. Whether you are currently in the thick of caregiving or navigating the aftermath, this episode provides a compassionate compass to help you draw upon the parts of your spirit that remain unbroken. Show Notes & Resources: Book: Seeking Wisdom in Death’s Shadows by Thomas AttigBook: The Heart of Grief: Death and the Search for Lasting LoveSpecial Offer: Use this link for Oxford University Press for 30% off Thomas’s latest book.Get the book at a discount here https://global.oup.com/academic/product/seeking-wisdom-in-deaths-shadows-9780197776094?promocode=aufly30 Join the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care.Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.Social Media: Follow the journey on Instagram and Facebook.

    Wisdom-Based Caregiving - Finding Strength in the Broken Places
  2. Jul 7

    Handling Resentment + Difficult Dementia Parents

    Stop the spin cycle of caregiver resentment and guilt. This episode explores the heavy emotional toll of dementia caregiving and how to reclaim your sanity. Many caregivers struggle with secret anger and shame while navigating Alzheimer’s or other forms of cognitive decline. We dismantle the myth that caregiving must be a sacred journey. Instead, we offer a raw look at the frustration of repetitive questions and lost independence. You will learn the power of the pivot to avoid pointless arguments. Discover why entering their reality is more effective than correcting their facts. We also discuss the biological reasons behind sudden sugar cravings in dementia patients. Learn how to embrace the present moment by watching the simple joy of puppies or kittens. Stop trying to be a perfect caregiver and start being a resilient one. This conversation provides the emotional intelligence tools you need to survive the toughest days. Tune in to find out why radical honesty is your best defense against burnout. About Our Guest Alfredo Botello is an award-winning screenwriter and the author of Spin Cycle: Confessions of a Reluctant Caregiver. His work focuses on bringing dark humor and radical honesty to the complex dynamics of family life and memory loss. Book: Spin Cycle: Confessions of a Reluctant CaregiverWebsite: AlfredoBotello.com Join the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care.Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.Social Media: Follow the journey on Instagram and Facebook.

    Handling Resentment + Difficult Dementia Parents
  3. Jun 30

    Dementia & The Long Goodbye - How to Navigate Ambiguous Grief

    Discover the hidden emotional toll of ambiguous loss and the complex process of grieving the living. This episode explores the heavy reality of caring for someone who is physically present but mentally or emotionally changed. We define what ambiguous loss feels like for caregivers and why it lacks traditional closure. T he conversation breaks down the four tasks of mourning within the context of dementia. You will learn how to move through the pain of the long goodbye without losing yourself. We discuss the paradox of safety loops and why choosing defiance can lead to a deeper sense of hope. The dialogue also addresses common caregiver guilt and the isolation of living in a constant state of mourning. Discover how a interactive journal can turn a monologue into a healing dialogue. Learn to name your internal experiences to gain better awareness and understanding. We explore why isolation is a choice and how sharing your story leads to true resolution. This is a roadmap for anyone navigating a grief process that has no funeral. About Our Guest John is the founder of Guardian AIngles, a platform designed to guide individuals through the grieving process using structured, reflective journaling. After experiencing significant personal loss, he developed this tool to help others find language for their pain and move toward resolution. Website: Guardian AInglesSocial Media: LinkedIn | InstagramSpecial Offer: Visit the website for a 7-day free trial and explore the foundations program to jumpstart your healing journey. Join the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care.Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.Social Media: Follow the journey on Instagram and Facebook.

    Dementia & The Long Goodbye - How to Navigate Ambiguous Grief
  4. Jun 23

    SWAT Team Wisdom for the Exhausted Caregiver

    Tactical dementia caregiving requires a high-stakes mindset to manage the daily pressures of memory loss and cognitive decline. This approach to tactical dementia caregiving focuses on mission readiness and biological resilience for the long-term journey. The conversation explores why caregivers often run out of gas due to chronic stress and systemic burnout. You will learn the specific physiological triggers that put a caregiver’s own health at significant risk. The discussion highlights the critical link between insulin resistance and brain health. It covers advanced recovery tools like peptide therapy, exogenous ketones, and hormone optimization. We also share a practical strategy for building a specialized support team to handle unpredictable crises. By framing stress as a manageable verb rather than an immovable noun, you can reclaim your mental clarity. This episode provides the essential medical intel needed to protect your brain while caring for others. Tune in to discover how tactical discipline can transform your caregiving experience and help you thrive. About our guest Dr. Mark Sherwood is a Naturopathic Doctor and former SWAT officer dedicated to helping people achieve peak wellness and longevity. Official Website: Sherwood.tvInstagram: @DrMarkSherwoodNew Film: Forgotten Fortune Join the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Social Media: Follow the journey on Instagram and Facebook. Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care. Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.

    SWAT Team Wisdom for the Exhausted Caregiver
  5. Jun 16

    The Healing Power of Awe - Lessons from a 10-Year, 63 National Park Journey

    When life gets heavy, our immediate instinct is often to retreat. For caregivers navigating a grueling season of dementia or chronic illness, the world has a terrifying way of shrinking down to the four walls of the living room, creating an intense, compounding echo chamber of stress and isolation. But what if the ultimate tool for profound emotional healing—and a powerful shield for brain health—is waiting right outside your front door? In this episode, we are dismantling the somber narrative surrounding aging and dementia. I am joined by the inspiring duo behind the viral sensation @GrandmaJoysRoadTrip: wildlife veterinarian Dr. Brad Ryan and his unstoppable 96-year-old grandmother, Grandma Joy. A decade ago, in the throes of severe veterinary school burnout and mental health crises, Brad made a radical decision to pull himself out of despair: he took his 85-year-old grandmother camping for the very first time. What began as a single rainy weekend spontaneous road trip turned into a historic 10-year, 7-year continuous quest to visit all 63 U.S. National Parks. We dive deep into the fascinating science of "awe" and its impact on a changing brain. Brad and Grandma Joy share hilarious and moving stories from the road—including a chaotic 31-brown-bear encounter in Katmai National Park, Alaska—and offer deeply practical advice on how homebound or predominantly isolated families can scale down their experience to find daily "micro-doses of wonder" right in their own backyards. In This Episode, We Discuss:The Antidote to Isolation: Why physical environment shifts drastically improve cognitive clarity, mood, balance, and coordination at any age.Shattering the Age Divide: How viewing the caregiver relationship as a mutually beneficial partnership unlocks deep intergenerational wisdom and perspective.Overcoming Caregiver Burnout: Brad’s candid reflections on making mistakes on the road (including a scary vertigo spell and a fall in Iceland) and why the joy completely dwarfs the fatigue.Micro-Dosing Wonder: Practical ways to bring nature to homebound seniors through bird feeders, butterfly gardens, and accessible state or local community metro parks.Capturing the "Gold Dust": Heartfelt advice on using your camera phone to intentionally document the humor, repetitive stories, and pristine spirit of your loved one right now."Your life is way more than your circumstances... Humanity evolved from nature. If you can step away from the cacophony of bad news on television and the internet, and just look up at a redwood tree or across a massive canyon, a light bulb goes off. There is still so much out there worth living for." — Dr. Brad RyanConnect with Our Guests:Follow their ongoing adventures and check out their brand-new book tour schedule across all 50 states on Instagram: @GrandmaJoysRoadTrip Join The Dementia Decoded Community:Ready to solve the daily puzzles of caregiving and take radical ownership of your journey? Upgrade your subscription to The Dementia Decoded Lab on Substack to get deep-dive strategy blueprints and book a private, one-on-one Strategy Session with me today!

    The Healing Power of Awe - Lessons from a 10-Year, 63 National Park Journey
  6. Jun 9

    How to Stop Repetitive Questions in Dementia with One Simple Game

    Stop repetitive loops and find deeper connections in your dementia care journey by using the power of time travel. This episode explores why we must stop trying to fix the disease and start facing it with playfulness. Learn how to bypass the frustration of constant questions by entering the reality where your loved one currently lives. We dive into a simple game that transforms stressful interactions into moments of genuine joy and emotional healing. Discover why shifting from a fixer mindset to a traveler mindset reduces caregiver burnout and opens doors to lost family stories. The conversation highlights the art of being present and observing the small details of their world. You will hear how a single question about age can reveal deep-seated fears and provide long-awaited peace for your loved one. This unique approach turns advanced Alzheimer’s care into a profound opportunity for connection and discovery. Tune in to learn practical tactics for meaningful engagement that honor their history and protect your own mental well-being. About Our Guest Glenna Hecht is a speaker, consultant, and the author of the memoir and guide, How Old Are You Today?. As a former HR professional turned caregiver, she cracked the code on dementia engagement by applying her problem-solving skills to the emotional reality of memory loss. You can find her book and connect with her through the following links: Purchase the book: How Old Are You Today?Website: Glenna HechtConnect on LinkedIn: Glenna Hecht Join the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care.Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.Social Media: Follow the journey on Instagram and Facebook.

    How to Stop Repetitive Questions in Dementia with One Simple Game
  7. Jun 2

    STOP THE CRISIS: 3 Systems to End Caregiver Burnout

    Caregiver burnout and dementia care strategies are essential for anyone navigating the complex journey of memory care. This episode explores why practical dementia care strategies are the key to preventing long-term caregiver burnout. We discuss shifting your mindset from a solo task manager to a capable care leader. You will learn why a five-minute micro-vacation is a mandatory medical necessity for your brain. We examine the science of the vibe check and why loved ones often match your energy. Our conversation highlights how to build a care team binder filled with essential policies and procedures. These systems allow you to step away with total peace of mind. We also share a powerful story about how emotional memory outlasts factual details. This insight helps you understand why feelings matter more than words in late-stage Alzheimer's. Stop building the plane while flying it and start implementing systems that actually work. Tune in to discover how to reclaim your time and protect your mental health. About Our Guest: Ashley Herrera is a registered nurse and the founder of La Perle Concierge. She specializes in helping families transition from overwhelmed caregivers to organized care managers through personalized coaching and concierge support. Visit La Perle Concierge: https://laperleconcierge.com/Follow Ashley on Instagram: @laperleconciergeJoin the "Dementia Decoded" Inner Circle As we officially step into our new name, I am so excited to invite you into our growing community on Substack. What I’m loving most about this space is that it’s just information and support—pure and simple. We’ve cut out all the "social media" machinations and algorithms you usually have to jump through just to find the help you need. This is about real strategies and a real community, delivered straight to your inbox. With this episode, we’ve also officially gone live with our Paid Subscription. By joining as a paid member, you aren't just supporting the mission of this show; you’re getting deeper access to the "decoded" strategies we discuss every week. Join us here! Connect with Dementia Decoded Stay connected for more strategies, personal stories, and caregiver support: Substack: The Caregiver's Guide — Subscribe for weekly insights and deeper dives into dementia care.Website: DementiaDecoded.org — Explore the Dementia Decoded Lab and podcast archives.Social Media: Follow the journey on Instagram and Facebook.

    STOP THE CRISIS: 3 Systems to End Caregiver Burnout
4.9
out of 5
85 Ratings

About

Stop guessing and start leading. Caring for a loved one with dementia or Alzheimer’s shouldn't feel like a constant state of crisis. In Dementia Decoded, host Jennifer Fink transforms her two decades of caregiving experience into a masterclass for the working family caregiver. After eight years as Fading Memories, we have evolved to provide you with more than just stories—we provide a strategy. As a caregiving strategist and advocate for AARP and the Alzheimer’s Association, Jennifer decodes the medical jargon, communication hurdles, and emotional toll of the disease to help you advocate for your loved one without losing yourself in the process. Each week, we dive into: Caregiving Strategies: Practical tools for managing daily care and long-term planning. Brain Health: Understanding the science behind the "why" of dementia. Advocacy & Support: Navigating the healthcare system and finding your village. The "Real Talk": Permission to laugh through the absurdity and heal through honest conversation. Experience matters. Strategy wins. Laughter heals. Whether you are in the first stages of a diagnosis or deep in the trenches, it’s time to turn the light on. Welcome to Dementia Decoded.

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