100 episodes
Dementia Matters Wisconsin Alzheimer‘s Disease Research Center
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- Health & Fitness
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4.5 • 84 Ratings
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Our podcast is here to help humanize Alzheimer’s disease, by speaking with the experts in our community to keep you informed on the latest headlines, research studies, and caregiver resources.
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The Future of Sharing and Accessing Alzheimer’s Disease Data
Dementia Matters Special Series: The National Strategy for Alzheimer's Disease Data and Research Part 2
Dr. Sarah Biber, the program director for NACC, joins the podcast to discuss building a one-stop shop for Alzheimer’s Disease Research Center (ADRC) data and what it means for the future of collaborative Alzheimer’s disease research.
Guest: Sarah Biber, PhD, program director, National Alzheimer’s Coordinating Center
Show Notes
Learn more about Dr. Biber’s talk at NACC’s Spring 2022 Alzheimer’s Disease Research Center Meeting by reading her presentation slides on NACC’s website.
Learn more about the National Alzheimer’s Coordinating Center at their website.
Register for NACC’s Fall 2022 ADRC Meeting on their website. Registration is free and open to the public. The fall meeting, which will focus on diversity, equity, and inclusion in Alzheimer’s research, will take place Thursday, October 20th to Friday, October 21st both virtually and in-person in Chicago, IL.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter. -
Introducing the National Alzheimer’s Coordinating Center
Dementia Matters Special Series: The National Strategy for Alzheimer's Disease Data and Research Part 1:
Kicking off our six-episode series on the National Alzheimer’s Coordinating Center and their Spring 2022 ADRC meeting, Dr. Walter Kukull joins the podcast. He explains what NACC is, what they do with the data they collect from the 42+ Alzheimer’s Disease Research Centers, the center’s biannual ADRC meetings and what he’s most excited about for the next five years of Alzheimer’s disease research.
Guest: Walter Kukull, PhD, director, National Alzheimer’s Coordinating Center, professor, University of Washington department of epidemiology
Show Notes
Learn more about the National Alzheimer’s Coordinating Center at their website.
View slides and video recordings of NACC’s Spring 2022 ADRC Meeting on the NACC website.
Register for NACC’s Fall 2022 ADRC Meeting on their website. Registration is free and open to the public. The fall meeting, which will focus on diversity, equity, and inclusion in Alzheimer’s research, will take place Thursday, October 20, and Friday, October 21, both virtually and in person in Chicago, IL.
Learn more about Dr. Kukull in his bio on the University of Washington’s Memory and Brain Wellness Center website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter. -
Study Shows APOE e4 Not Associated with Alzheimer’s Disease in American Indian Populations
Researchers typically recognize the APOE e4 gene as a significant genetic risk factor for cognitive decline and dementia. However, a new study has found that the allele is not linked to neurodegeneration for all races and ethnic groups, specifically for American Indian populations. Dr. Astrid Suchy-Dicey joins the podcast to discuss her study, the importance of representation in Alzheimer’s disease research, hypotheses for why this allele isn’t a risk factor for all populations and what it means for research going forward.
Guest: Astrid Suchy-Dicey, PhD, epidemiologist, assistant research professor, Washington State University, Institute for Research and Education to Advance Community Health (IREACH)
Show Notes
Read the research highlights of Dr. Suchy-Dicey’s study on the National Institute of Aging website.
Read Dr. Suchy-Dicey’s study, “APOE genotype, hippocampus, and cognitive markers of Alzheimer's disease in American Indians: Data from the Strong Heart Study,” through the journal Alzheimer’s & Dementia’s website.
Learn more about the Strong Heart Study on their website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter. -
Improving Registries and Representation in Alzheimer’s Disease Research
Research participants are recruited through a variety of practices. One of the most popular tools are registries, but how can registries affect diversity and representation within research? Josh Grill joins the podcast to discuss his work studying research registries, their effects on representation for disadvantaged communities, and how research recruitment and outreach can be improved going forward.
Guest: Josh Grill, PhD, director, Institute for Memory Impairments and Neurological Disorders, associate professor, University of California, Irvine
Show Notes
Learn more about Dr. Grill at his bio on the University of California - Irvine website.
Read Dr. Grill’s study, “Diversifying recruitment registries: Considering neighborhood health metrics,” through the National Library of Medicine website.
Learn more about University of California - Irvine's Institute for Memory Impairments and Neurological Disorders (UCI-MIND) on their website.
Listen to our episode with Dr. Amy Kind about the link between neighborhood disadvantage and health outcomes on our website or wherever you listen.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter. -
Highlights from the 2022 Alzheimer’s Association International Conference
AAIC Special Series Part 8:
Closing out our special series spotlighting the 2022 Alzheimer’s Association International Conference, Dr. Percy Griffin joins the podcast to discuss highlights from this year’s event.
Guest: Percy Griffin, PhD, director, scientific engagement, Alzheimer’s Association
Show Notes
Find more highlights from the conference, including on-demand content that is available to watch through September 1, 2022 at 11:59p.m. PT , at the AAIC website.
Learn more about Dr. Percy Griffin at his bio on the Alzheimer’s Association website.
Listen to our AAIC special series episode with Dr. Carl Hill, mentioned by Dr. Chin at 3:41, on our website, Spotify, Apple Podcasts, YouTube, or wherever you listen.
Listen to our AAIC special series episode with Dr. Heather Snyder, mentioned by Dr. Chin at 18:22, on our website, Spotify, Apple Podcasts, YouTube, or wherever you listen
Find the news highlights on diet, racism, preeclampsia, COVID-19, and more mentioned by Dr. Chin at the AAIC website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter. -
COVID-19 and Its Effects on the Brain
AAIC Special Series Part 7:
Recent studies have shown that 1 in 5 U.S. adults who were diagnosed with COVID-19 now deal with Long COVID, a condition where individuals report fatigue, cognitive issues, difficulty breathing, and other symptoms lasting at least three months after infection. With these reported effects on cognition and brain health, what else do we know about COVID’s impact on the brain? Dr. Heather Snyder joins us to talk about what we know about COVID-19’s effects on the brain and her upcoming scientific session at AAIC 2022.
Guest: Heather Snyder, PhD, vice president, medical & scientific relations, Alzheimer’s Association
Show Notes
AAIC is the world’s largest forum for the dementia research community. Register for the plenary events, which are free to the public with registration, at the AAIC website.
Read more about Dr. Snyder at her bio on the Alzheimer’s Association website.
Connect with us
Find transcripts and more at our website.
Email Dementia Matters: dementiamatters@medicine.wisc.edu
Follow us on Facebook and Twitter.
Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter.
Customer Reviews
Dementia Matters
This podcast is very helpful to me as a caregiver to my wife as she goes through MCI to now more advanced issues. This podcast helps me to learn and understand cognitive impairment and what I might possibly do to provide better care. We are blessed with quality Family and Memory Doctors. This podcast gives me more understanding and how I might possibly better relate to our Doctors.
Thanks so much.
Thank you for this. I’m only 23 and helping my grandmother caring for my grandfather through this journey and you’re right, there’s so little on it. I’m a part of the google generation. I’m used to looking something up and finding hundreds of articles, forums, podcasts, YouTube videos, and support communities and there’s surprisingly little on this. Maybe because the google gen isn’t quite dealing with this yet, all the support groups I find are just a few middle age people talking and giving each other tips and support. And also the research itself is really just now taking off and being understood. Either way. I’m very happy for this resource.
Mindfulness
The least likely of all your podcasts that I think is relevant