Zebra Talks: Living Your Best Bendy Life

Dr Libby Hinsley

Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.

  1. Nutrition Foundations for Hypermobility with Jennifer Parkinson

    Jun 8

    Nutrition Foundations for Hypermobility with Jennifer Parkinson

    Host Dr. Libby Hinsley welcomes Jennifer Parkinson, a certified functional nutrition practitioner and founder of EDS Nutritionist, who supports people with Ehlers-Danlos Syndrome, MCAS, and POTS.   Jennifer shares her long journey from early joint pain, repeated shoulder surgeries, gut and gynecologic surgeries, dizziness and brain fog, and eventual EDS diagnosis after years of dismissal, to pursuing functional nutrition training. She explains differences among nutrition professionals, emphasizing individualized, root-cause approaches rather than one-size-fits-all diets.   Key themes include stabilizing blood sugar, assessing mineral patterns, histamine “bucket” concepts, and iron dysregulation. She also highlights how mineral balance can impact pain, muscle-building, and subluxations alongside physical therapy.   00:00 Welcome to Zebra Talks 00:35 Meet Jennifer Parkinson 01:50 Early Symptoms and Surgeries 03:50 Finally Naming EDS 06:09 Finding Functional Nutrition 09:35 Credentials and Training Paths 11:10 Nutrition Is Individual 12:48 Minerals Explained 15:04 Foundations Beyond Food 16:22 Sensitive Bodies and Normal Labs 17:55 Iron and Next Steps 18:00 Iron Testing Pitfalls 19:07 Iron Overload Clues 20:16 Liver Link to Iron 22:33 Liver Support Basics 23:36 Castor Oil Packs 24:46 Minerals and Blood Sugar 27:30 Protein and Meal Timing 29:22 Signs of Dysregulated Glucose 30:20 Minerals for Joint Stability 33:46 Whole Body Approach 34:17 Where to Find Jennifer 34:48 Final Wrap Up

    35 min
  2. Jun 1

    Scoliosis and Hypermobility: Symptoms, Treatment, and Moving Without Fear with Dr. Laura Glazebrook

    Host Dr. Libby Hinsley welcomes physical therapist Dr. Laura Glazebrook to discuss scoliosis, especially its overlap with hypermobility. Laura shares her own history of rapidly progressing scoliosis, undergoing a spinal fusion at age 11, and later realizing she likely falls on the hypermobility spectrum.   They review scoliosis prevalence in the general population, current thinking on adolescent development, and why Cobb angle doesn’t reliably predict pain. Glazebrook describes typical signs and symptoms and outlines scoliosis-specific exercise approaches like the Schroth method using breath, pressure management, and progressive stabilization. They discuss surgical thresholds (often >46°), evolving views on quality of life at higher angles, and counter fear-based messaging by emphasizing safe, individualized movement and strength.    00:00 Welcome to Zebra Talks 00:35 Meet Dr. Laura Glazebrook 02:04 Laura’s Scoliosis Story 04:12 Fusion Surgery Aftermath 04:56 How Common Is Scoliosis 06:14 Why Scoliosis Develops 07:58 Degrees vs Symptoms 09:46 Common Signs and Clues 12:02 Schroth Method Basics 14:48 What Improves With Therapy 16:17 When Surgery Is Considered 19:05 Fusion and Tethering Options 19:52 Hypermobility Overlap Patterns 22:05 Movement Fear and Confidence 25:08 Activity Myths Debunked 27:19 Where to Find Dr. Glazebrook 28:11 Final Thanks and Goodbye

    29 min
  3. May 18

    Abbey Phillipson on Visibility & Advocacy for Rare Types of EDS

    Host Dr. Libby Hinsley interviews Abbey Phillipson, a classical Ehlers-Danlos syndrome (EDS) advocate and Paralympic strength and conditioning coach at the University of Michigan. Abbey shares her experience with early signs, diagnosis via genetics (COL5A1), and serious complications of Classical EDS.   She discusses why some rare EDS types may be diagnosed earlier yet still missed, de novo mutation rates, and definitions and prevalence of rare vs ultra-rare EDS types. Abbey describes founding the patient-led Collagen Advocacy Network to connect people with rare subtypes, critiques how growing EDS awareness can create misunderstanding of rare types, and proposes more nuanced naming to support individualized care amid anticipated 2026 criteria changes.   She also shares a bit about her inspiring work in adaptive sports and disability-inclusive fitness.   00:00 Welcome to Zebra Talks 00:35 Meet Abbey Phillipson 01:59 Classical EDS Diagnosis Story 04:07 Symptoms and Complications 05:55 When Rare Types Get Diagnosed 07:46 De Novo Mutations Explained 08:42 Rare vs Ultra Rare Prevalence 11:51 Building a Rare Types Group 13:21 Making Rare Real Together 14:36 Awareness Boom and Erasure 19:21 A More Nuanced Future 22:54 Renaming and Reorganizing EDS 26:34 Criteria Changes and 2026 30:58 Collagen Advocacy Network 32:08 Paralympic Coaching and Adaptive Sport 34:34 Strength Training and Joyful Movement 35:48 Final Thanks and Goodbye

    36 min
  4. May 11

    Pelvic Floor Dysfunction & Hypermobility with Dr. Amy Stein

    Host Dr. Libby Hinsley interviews pelvic floor physical therapist and author Dr. Amy Stein, founder of Beyond Basics Physical Therapy. Stein discusses the strong overlap she sees between hypermobility and pelvic floor dysfunction (estimating about 70% of her patients), including patterns of pelvic floor gripping used for stability, pelvic pain, prolapse, hernias, constipation/IBS symptoms, possible pelvic congestion, and bladder, bowel, and sexual dysfunction across all genders.   She emphasizes a multimodal approach: calming tissues, building stability gradually with isometrics and deep core work, modifying exercise, and prioritizing nervous system regulation and mindfulness. Stein also addresses perimenopause/menopause and their effects on symptoms, tissue elasticity, muscle health, and the role of hormone therapy and topical creams. She describes her Wellness By Nature CBD products and advises seeking experienced pelvic floor PTs with thorough assessment.   Highlights of this episode include:   00:00 Welcome to Zebra Talks 00:35 Meet Amy Stein 01:45 Hypermobility overlap 03:59 Amy’s bendy story 05:57 Common pelvic patterns 07:26 Multimodal treatment 09:47 Pelvic floor basics 12:07 Stability and exercise 15:35 Bowel and congestion 18:18 Perimenopause and hormones 22:48 Tissue changes and creams 24:18 CBD products explained 27:37 Lifestyle and whole body 31:27 Finding the right pelvic PT 33:40 Wrap up and resources

    36 min
  5. Apr 20

    Taming the Zebra: Tethered Cord and Cranio-Cervical Instability in Hypermobility with Heather Purdin

    Host Dr. Libby Hinsley welcomes physical therapist and manual therapist Heather Purdin, co-author of “Taming the Zebra,” to discuss her book and her biopsychosocial approach to treating hypermobility syndromes. The conversation continues by highlighting tethered cord syndrome, its key features, imaging considerations, conservative/manual approaches, and surgical cautions. They also discuss cranio-cervical instability versus a hypermobile neck, the role of inflammation/MCAS, stabilization strategies, and referrals, and share where to find Purdin’s resources and courses.   00:00 Welcome to Zebra Talks 00:35 Meet Heather Purdin 02:31 Becoming a Zebra Tamer 04:15 Why Write Taming the Zebra 06:52 What Volume Two Covers 09:56 Systemic Context for PT 11:36 Reader Feedback and Hope 12:29 Tethered Cord Explained 15:30 Symptoms and Screening Clues 17:28 Bladder Testing and Differentials 19:06 MCAS and Fascia Research 21:43 When to Refer and Imaging 23:46 Prone MRI Insights 24:36 Gentle Tethered Cord Relief 25:29 Alignment Triggers and Safety 27:52 CCI Versus Hypermobility 28:56 Symptoms and Muscle Retraining 32:05 Inflammation, MCAS, and Imaging 34:45 Stabilization Training Example 38:48 Posture Pelvis Ribcage Link 40:22 Neck Exercise Progressions 42:41 Mindset and Finding Providers 44:31 Resources and Wrap Up   EPISODE LINKS & RESOURCES: Taming the Zebra Good Health Physical Therapy and Wellness Follow Heather Purdin on Instagram @heather_purdinpt Follow Taming the Zebra on Instagram @tamingthezebra Follow Good Health Physical Therapy and Wellness on Instagram @goodhealthptpdx Follow Good Health Physical Therapy and Wellness on Facebook LINKS AND RESOURCES: Learn more about Dr. Libby Hinsley, How to Work with Her, or Join her Email List Follow Libby Hinsley on Instagram @libbyhinsleypt Follow Libby Hinsley on Facebook Leave a review on iTunes

    46 min
4.9
out of 5
30 Ratings

About

Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.

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