15 episodes

Welcome to the Know Stroke Podcast by Co-Founders David Dansereau and Michael Garrow produced to support the reach of our stroke community and the mission of our EnableUs Digital Stroke Support Platform at https://www.enable4us.com. We get you caught up on the latest stroke science, worldwide community support collaborations and interview stroke survivors, top neurorehabilitation researchers, health care experts and explore emerging rehabilitation technologies. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true potential and care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Contact us here: https://www.enable4us.com/survivor-storiesMusic Credit to JAKEEZo on Soundcloud @user-257386777

Know Stroke Podcast David Dansereau | Michael Garrow

    • Health & Fitness
    • 5.0 • 6 Ratings

Welcome to the Know Stroke Podcast by Co-Founders David Dansereau and Michael Garrow produced to support the reach of our stroke community and the mission of our EnableUs Digital Stroke Support Platform at https://www.enable4us.com. We get you caught up on the latest stroke science, worldwide community support collaborations and interview stroke survivors, top neurorehabilitation researchers, health care experts and explore emerging rehabilitation technologies. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true potential and care. Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? Contact us here: https://www.enable4us.com/survivor-storiesMusic Credit to JAKEEZo on Soundcloud @user-257386777

    Interview with Lester Leung,MD,MSc Director Comprehensive Stroke Center Tufts Medical Center

    Interview with Lester Leung,MD,MSc Director Comprehensive Stroke Center Tufts Medical Center

    Season 2 Episode 7 -Lester Y. Leung, MD, MSc Tufts MC
    Quick Bio:
    Board certified vascular & general neurologistAssistant Professor of NeurologyDirector, Comprehensive Stroke Center at Tufts Medical CenterDirector and Founder, Stroke and Young Adults (SAYA) ProgramPrincipal Investigator, Tufts Vascular Neurology Research GroupDirector, Stroke Service at MetroWest Medical CenterCo-Chair, American Heart Association-American Stroke Association Massachusetts Stroke Systems of CareThis was a real impactful episode for my co-host Mike and I as we convened late this past Sunday evening to interview board certified vascular and general neurologist, Lester Leung, MD, MSc of Tufts MC.   For myself (co-host David Dansereau), this episode was also very personal as I was able to thank Lester for the critical role he played in my own stroke recovery both as my neurologist and as a friend and coach.  
    Lester grew up in New Orleans,  LA and after coming to Boston to attend college he returned home to New Orleans for medical school and found himself on a mission to help rebuild New Orleans post Hurricane Katrina. From this early advocacy, rebuilding homes and riding with EMS to help Katrina victims “where they were” he was moved and impacted by the fractured healthcare system and all the challenges it presented for victims during an emergency like Katrina.  Lester credits these early lessons learned as well as having really dynamic mentors along the way, in particular New Orleans based stroke neurologist Sheryl Martin-Schild, MD,PhD for enlightening him on how people with stroke are suffering and have multifaceted unmet needs.  This early career experience solidified Dr. Leung’s dedication to neurology and when he later moved back to Boston to begin his career you’ll learn how these early lessons sparked his passion to do more for the stroke community, with a special interest in the needs of young stroke. This was a moving and enlightening discussion and together, Lester, Mike and I unpacked many stroke topics including: 
    Exploring and studying screening of late complications after stroke among stroke survivors, esp. young stroke survivorsDr Leung’s advocacy to spearhead a statewide/regional/(global)* PSA on the need to seek emergency care for stroke despite the pandemic surge. * Mike revealed he even viewed and heard Lester’s PSA used across the Atlantic as a model to use as a stroke awareness call to action while in Dublin!Treating patients at Tufts in later time windows after stroke (late presenter thrombolysis)Understanding disparities and stroke recovery outcome, including novel factors like neighborhood income inequality, and community investment in stroke rehab resources.  Use of high technology and investment in stroke recovery vs high touch longitudinal coaching and education models and how both involve following the reimbursement dollars for care delivery and addressing recovery plateausThe Comprehensive Stroke Center at Tufts, including its first in the nation SAYA Program (Stroke And Young Adult)  an outpatient longitudinal care model founded by Dr. Leung.  Watch on YouTube: https://youtu.be/YEp0i78HtyI
    http://lesterleung.com
    http://youngadultstroke.org
    https://www.tuftsmedicalcenter.org/physiciandirectory/lester-leung
    PSA from Tufts : https://youtu.be/UdHSYjKzG-g
    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 1 hr 5 min
    Interview with Kaitlyn Jones OT Program Manager with XBOX Gaming Accessibility Team

    Interview with Kaitlyn Jones OT Program Manager with XBOX Gaming Accessibility Team

    Know Stroke Podcast Season 2 Episode 6

    Welcome back to the Know Stroke Podcast! Our guest today is Kaitlyn Jones. Kaitlyn is an occupational therapist and currently a Program Manager working with the XBOX Gaming Accessibility Team where she is able to use her clinical background and perspectives to help guide inclusive product design. She is very passionate about the ways in which technology that is accessible can enhance the quality of life of all people. She has done extensive research exploring the benefits of video game play that extend beyond fun and leisure to functional performance, mental health and social participation. She was the 2018 recipient of the Edward Leahy Jr Award for Innovation in Technology and the 2017 recipient of the Maria Gervasio Award for Outstanding Commitment to Professional Development in Occupational Therapy. 
    Kaitlyn was inspired by her father who founded Warfighter Engaged in 2012. Warfighter Engaged is a on-profit with a mission to improve the lives of severely wounded and disabled warfighters through custom adapted devices. Serving as the Director of Clinical Outreach, Kaitlyn interfaces with clinicians, private practices, hospitals and other clinical organizations regarding the importance of inclusive design, adapted technology, and the benefits of video game integration into therapeutic settings. 
    She is currently pursuing her Doctorate of Occupational Therapy degree with a thesis focused on promoting the use of commercial video game-based interventions for improved patient outcomes.
    In this conversation we dive into:
    How Kaitlyn started a career at the intersection of OT & TechnologyWhat the role of Accessibility is in the tech industry Why OTs and other therapists are important for product designThe difference between leisure and therapeutic video game based interventionsWhat the barriers are to using video game based therapy in the clinic, and homeWhat Kaitlyn sees as the future of therapy in the homeWe hope you enjoy this conversation! 
    Watch this episode on our YouTube Channel:
    https://youtu.be/ENZhmxd2tEo
    You can find Kaitlyn on Twitter: @kaitlynjones_ 
    And check out the amazing work happening at War Fighter Engaged: @WFEngaged

    Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777
    About the Know Stroke Podcast
    Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com
    We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.
    Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?
    Connect with Team EnableUs and the Know Stroke Podcast Hosts:
    https://www.enable4us.com
    https://twitter.com/Enable__Us
    https://www.instagram.com/enable.us/

    Complete our patient survey at:
    https://know-stroke.org


    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 54 min
    Interview with Brooke Medel, Stroke Nurse Navigator at UConn Health

    Interview with Brooke Medel, Stroke Nurse Navigator at UConn Health

    Know Stroke Podcast Season 2 Episode 5
    Navigator: one that navigates or is qualified to navigate.

    Who are some people that come to mind when you think of navigators? Most navigators have personality traits of wanting to help others achieve their goals. Brooke Medel is a Stroke Nurse Navigator at UConn Health in Farmington, Connecticut. Joining the team at UConn in June Brooke has come into a crucial role supporting stroke survivors in the transition of care from the hospital back home and in adapting to life after stroke. Sounds like an important job, right? Brooke was born for this job. Once you listen to her story you'll understand the passion she brings into the role and why her patients are so lucky to have her.
    In this episode Brooke brings us through her day to day as a stroke nurse navigator. We explore the many challenges faced by stroke survivors and their loved ones at the point of discharge and her approach to supporting these challenges. You'll also hear about the Stroke Clinic at UConn Health and the amazing support they provide to the stroke thriver community. Brooke gives us a recap of the 3rd Annual Stroke Symposium which was held last month as part of World Stroke Day, October 29th. We've shared a link to a replay of that event for you below, and also links to the UConn support group which meets the fourth Monday of every month. You can attend these support groups in person if you are in the Central Connecticut area, or you can tune in virtually. Check it out, ask questions, and connect with fellow stroke thrivers!

    Show Resources for this Episode:
    Support group: https://health.uconn.edu/stroke-center/events-and-programs/
    Event recap: http://mediasite.uchc.edu/mediasite41/Play/963820ef2b6344eeb76e3cbfdc303bfc1d
    FACEBOOK PAGE: Search Connecticut Stroke Awareness (made by one of the stroke survivors that shares information from UConn support group)
    For more on “In the News” segment referenced in this episode visit:https://journals.lww.com/neurotodayonline/fulltext/2021/11040/the_challenges_of_maintaining_telehealth_access_in.8.aspx
    About the Podcast: To listen to this episode on our podcast channel visit:  https://knowstrokepodcast.buzzsprout.com/ 
    To watch this episode on our VideoCast YouTube Channel:
    https://youtu.be/p042m3p3p_A
    Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777
    About the Know Stroke Podcast
    Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com
    We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.
    Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? 
    Contact us here: https://enable4us.
    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 55 min
    #WorldStrokeDay Patient Empowerment Edition

    #WorldStrokeDay Patient Empowerment Edition

    Know Stroke Podcast S2E4
    Our brains are incredible organs that center our thoughts, record our experiences and emotions, control our behaviors and provide the processing power that enable us to move our bodies. With the upcoming #WorldStrokeDay (October 29th) this brief episode focused on patient focused events and resources that help our incredible brains stay healthy and repair by sharing lived experiences and knowledge to empower our brains and our souls to heal and recover after stroke.

    On Episode 4 of season 2 of the Know Stroke Podcast we started the conversation with a little trust exercise where David asked Mike to open up the show “live and unscripted” before he revealed a special guest.  Besides being a great sport Mike shared his, of course, new and ever changing secret location for this podcast filming,  a personal story about his own stroke thriver (his mom) and her positive experience sharing her own survivor story for the first time.  Along with it he provided a resource for an upcoming patient event where you can meet other survivors and hear their inspirational stories and perspectives here:

    UConn Health’s 3rd Annual Stroke Survivors Symposium (offered virtually October 28th 5-7pm EST)  Advanced registration recommended here: https://uchc.webex.com/webappng/sites/uchc/meeting/register/862651b29173452890785abfdb865d5a

    Mike and David also provided a reminder and call to action to head over to their own mission driven patient resources, surveys, survivor stories,Next Step Forward Program and rehab technology interviews  at https://www.enable4us.com


    Besides offering insights into the benefits of pet therapy David added one of his favorite free print resources, Brain and Life Magazine (brainandlife.org) by the American Academy of Neurology.  To get your free home delivery, head online to http://www.myBLsub.com to subscribe.


    About the Podcast:
    To listen to this episode on our podcast channel visit:  https://knowstrokepodcast.buzzsprout.com/

    To watch this episode on our VideoCast YouTube Channel:
    https://youtu.be/xGJe5Hr9U8o

    Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777

    About the Know Stroke Podcast
    Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com

    We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.

    Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast?

    Contact us here: https://enable4us.com/survivor-stories

    Complete our know stroke patient survey at https://know-stroke.org

    Get this latest episode and all previous podcast episodes here: https://knowstrokepodcast.buzzsprout.com/

    Reach out to ma
    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 22 min
    Interview with Dr. Carolyn Brown, Founder of StrokeOT

    Interview with Dr. Carolyn Brown, Founder of StrokeOT

    On Episode 3 of Season 2 of the Know Stroke Podcast we were joined by an old friend, Dr. Carolyn Brown. Before Dr Brown joined, per usual, David and Mike covered this past weeks "In The News" section. The headline that popped for us this week was 
    Mindmaze scores big with $125M for gamified neurotherapeutics platform
    This is a company Mike has had his eye on since researching the use of Virtual Reality for stroke rehabilitation as part of his Masters Thesis. MindMaze is making a push to repairing neurological damage caused by stroke. MindMaze’s platform comprises a series of video games that, when combined with a motion-tracking camera and customized to a patient’s individual condition and needs, can support both rehabilitation and restoration of brain function. Several of the programs have already been cleared for use in the U.S. and Europe, and a new line of funding will now help make them even more widely available. Watch this space, we think it's going to have some massive potential. Oh, and so does Leonardo DiCaprio, he added MindMaze to his list of investments back in 2017.
    Dr Brown first assisted us with the Next Step Forward Program back in May 2020. Dr Brown is a clinically certified occupational therapist with over 25 years experience in neurological and orthopedic rehabilitation. 
    Prior to the pandemic Carolyn ran a series of exercise classes for stroke survivors in a clinic setting. In March of 2020 she quickly brought these classes online, delivered through Zoom. To her delight survivors loved the online classes. She continues to deliver weekly Telehealth classes, and is so bought into the potential of digital for occupational therapy that she launched her own non-for-profit, StrokeOT.  https://www.strokeot.org
    In this discussion we explored what is making telehealth stick from a patient/survivor perspective, what things need to be happen from a regulatory view for the commercial model to make sense, and what Carolyn has in her crystal ball for the future of stroke care. 
    And make sure you stick around until the end, we close things off with a short breathing exercise, you'll be sent off with your body and mind at ease. 
    To reach Dr. Brown: https://www.strokeot.org/about-me/
    To watch this episode on our YouTube Channel visit:  https://youtu.be/nF1P0Tle2VI
    Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777
    About the Know Stroke Podcast
    Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com
    We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.
    Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? 
    Contact us here: https://enable4us.com/survivor-stories
    Complete our know stroke patient survey at https://know-stroke.org
    Please support the show https://paypal.me/SmartMovesPT
    Get this latest episode and all previous podcast episodes here: https://knowstrokepodcast.buzzsprout.com/
    Reach out to make a one time donation to our mission or inquire about becoming a Know Stroke show sponsor at https://enable4us.com
     Support
    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 49 min
    A Season for Change, More on Music Therapy for Stroke in the News and Next Step Forward Updates

    A Season for Change, More on Music Therapy for Stroke in the News and Next Step Forward Updates

    About this Episode (S2E2): 
    Co-Founders of EnableUs and Co-Hosts of the Know Stroke Podcast Michael Garrow and David Dansereau recap In the News this past week and discuss more great media coverage on music therapy and how things continue rocking and rolling for MedRhythms. A few days after we released this episode, Brian Harris (Co-Founder and CEO) and the team announced a partnership with Universal Music Group. The partnership gives MedRhythms access to UMG’s entire catalog of music!
    Be sure to listen to our last episode (S2E1) with Brian if you missed it here:
    https://www.buzzsprout.com/1751132/9259638
    We also recapped Mike’s great blog post on this music news on our site, read it here:
    Walking to the Beat of Music
    https://www.enable4us.com/post/walking-to-the-beat-of-music
    Besides Mike "getting personal", then reminding David of his age and need to keep stretching (and then trying his best to cover it up with a compliment of his great podcast voice), the co-hosts got back on track and also reflected on how music moves them,  on the year past and what is hopefully emerging as a Season of Change for stroke survivorship and prevention. Finally, this condensed episode also included previewing future guests to reflect on  lessons have we learned from COVID, what barriers to care still exist and what new ones have emerged, as well as how technology could impact change to support digital care delivery in stroke care and recovery.  Oh and last but not least, in this episode we give a shout out to show gratitude for  our great podcast producer Jake Dansereau for always producing our episodes quickly, with great quality and a great show jingle to broadcast his own music talent too!
    To connect with the EnableUs Team:
    Web: https://www.enable4us.com
    David on LinkedIn: https://www.linkedin.com/in/daviddansereau/
    Michael on LinkedIn: https://www.linkedin.com/in/michaelgarrow/
    Instagram: https://www.instagram.com/enable.us/
    Twitter: https://twitter.com/Enable__Us
    To watch this episode on our YouTube Channel visit:  https://youtu.be/YCkOjMuhsPo
    Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777
    About the Know Stroke Podcast
    Welcome to the Know Stroke Podcast of Co-Founders David Dansereau and Michael Garrow to support the reach of our growing TeamEnable Us Community and the Mission of our EnableUs Digital Stroke Support Platform at enable4us.com
    We get you caught up on the latest stroke science, worldwide community support collaborations and interview top researchers and health care experts in the field. We also invite all stroke thrivers to join us so together we can share success to help you manage your own condition and maximize your true rehabilitation potential and preventive care.
    Want to join us as a stroke thriver guest and tell your stroke story on our website or this podcast? 
    Contact us here: https://enable4us.com/survivor-stories
    For more information about joining our show or advertising with us visit: https://enable4us.com
    Support the show (https://paypal.me/SmartMovesPT)

    • 25 min

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6 Ratings

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