The MS Trust podcast

MS Trust
  • 4.9 (14)
  • HEALTH & FITNESS
  • UPDATED MONTHLY

Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.Listen now for helpful information on symptoms, treatments, updates and a whole lot more.

  1. DEC 15

    Coping with MS pain in the long term: how to look after your mental health

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Living with persistent MS-related pain isn’t just a physical challenge it can take a big toll on your emotional wellbeing and mental health too. In this episode, we explore the psychological impact of chronic pain. We are joined by Dr Phillip Simpson, Consultant Clinical Psychologist with over 20 years of NHS experience, and Heather Daly, who shares her personal journey of living with MS and chronic pain, as we explore topics such as What chronic pain really means and how it affects the mindThe emotional challenges of living with persistent MS painHow psychological therapies such as CBT, ACT, and mindfulness can helpPractical coping strategies, acceptance, and behaviour change techniquesIf you are living with long term MS and what to explore different approaches to cope with it psychologically, this is the episode for you Episode notes Pain and MS - info from the MS TrustTreating nerve pain in MS  - info from the MS TrustPain resources - info from the MS TrustMindfulness and MS - info from the MS TrustWellbeing and MS - information hub to help you support your emotional wellbeingResources mentioned by Dr Phil Simpson  livewellwithpain.co.uk -  website with resources and information paintoolkit.org - focused on self management and has been created by an expert by experience  flippinpain.co.uk-  focused on challenging misconceptions about pain problems.

    1h 25m

  2. DEC 3

    Bonus episode: guided mindfulness for MS pain

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this special bonus episode of the MS Trust Podcast, mindfulness teacher Justin Standfield shares two guided meditations designed to help ease the challenges of living with MS pain. You’ll hear a shorter practice for pain awareness and relief, plus a longer meditation created especially for chronic pain. These two meditations can offer practical tools to bring comfort and calm whenever pain feels overwhelming. Episode notes Pain and MS - info from the MS TrustTreating nerve pain in MS  - info from the MS TrustPain resources - info from the MS TrustMindfulness and MS - info from the MS TrustWellbeing and MS - information hub to help you support your emotional wellbeingMS and mindfulness with Justin Standfield - Video with Justin from MS Trust's YouTubeCan mindfulness really help with my MS? - podcast from the MS Trust with Justin

    18 min

  3. NOV 24

    Managing MS nerve pain: what you can do yourself

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Neuropathic pain or nerve pain is one of the most challenging symptoms of MS, unpredictable, intrusive, and often invisible. In this episode, we focus on what people can do themselves, at home, to ease that pain and take back some control. We talk to lead pain specialist nurse Katherine Dyer and mindfulness teacher Justin Standfield who share practical strategies and calming techniques that can make a real difference. We also meet the MS Trust helpline team and learn more about the vital support they provide to people affected by MS. Episode notes: Episode notes Pain and MS - info from the MS TrustTreating nerve pain in MS  - info from the MS TrustPain resources - info from the MS TrustMindfulness and MS - info from the MS TrustWellbeing and MS - information hub to help you support your emotional wellbeingMS and mindfulness with Justin Standfield - Video with Justin from MS Trust's YouTubeDonate to MS Trust helpline - info from the MS Trust A selection mindfulness apps (not reviewed or endorsed by the MS Trust) HeadspaceCalmInsight Timer

    1h 20m

  4. OCT 28

    ECTRIMS Patient Community Day: why researchers need people with MS to get involved

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode we explore the biggest breakthroughs from ECTRIMS 2025, the world’s largest MS research conference. We look into new treatment insights, the push for inclusive research, and how people with MS can shape the future of care. Featuring Brett Drummond from MS translate, Natalie Busari from The Nerve of My MS, Dr. Claire Winchester research and engagement, at MS Trust , and Lucy Taylor our MS Trust CEO Episode notes ECTRIMS 2025 news round-up - news from the MS TrustCriteria used to diagnose MS updated  - news from the MS TrustECTRIMS patient Community - video recordings from the dayMS and Cognition - info from MS TrustDiet and MS - info from MS TrustLeave a gift in your will -  info from MS TrustMS Trust new strategy - info from MS TrustThe Nerve of My Multiples Sclerosis - Natalie Busari Instagram

    1h 10m
  5. What does the MS hug feel like? Banding tightness, rib cramps, stitch sensations, girdling pains, and how to deal with it

    SEP 22

    What does the MS hug feel like? Banding tightness, rib cramps, stitch sensations, girdling pains, and how to deal with it

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 In this episode of the MS Trust Podcast, we explore the MS Hug—one of the most confusing and uncomfortable symptoms of multiple sclerosis. From tight banding and rib cramps to stitch-like pain and breathlessness, we unpack what it feels like, why it happens, and how to manage it. Neurologist Kate Petheram joins us to explain the science behind the symptom, and we hear from people living with MS who share their personal experiences and tips for coping with this unwelcome embrace. Episode Notes The MS Hug - info from the MS Trust: mstrust.org.uk/a-z/ms-hug  MS Pain - info from the MS Trust: mstrust.org.uk/a-z/pain Stream for MS - Fundraising challenge from MS Trust: mstrust.org.uk/get-involved/fundraising-and-events/ms-trust-exclusives/streamforms

    40 min
  6. Why can’t I sleep? Night-time MS symptoms uncovered

    AUG 13

    Why can’t I sleep? Night-time MS symptoms uncovered

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms—from nerve pain, spasms, and restless legs to bladder urgency, burning sensations, and cold feet—and explore why these issues often seem to worsen after dark. Featuring insights from Associate Professor Rod Middleton from the UK MS Register and practical advice from Clinical Associate Professor & Honorary Consultant in Rehabilitation Laura Edwards, try to we answer your questions and share strategies to ease those night time symptoms symptom.   Episode Notes Night time symptoms - information from The MS Trust: https://mstrust.org.uk/news/expert/night-symptoms-and-ms Sleep and MS - information from The MS Trust: mstrust.org.uk/information-support/wellbeing-ms/sleep  Focus on sleep problems - information from the MS Trust: mstrust.org.uk/news/expert/focus-sleep-problems-ms   Sleep and MS podcast - podcast from MS Trust: mstrust.org.uk/information-support/podcasts/sleep-problems-ms Heat sensitivity and MS - podcast from MS Trust: mstrust.org.uk/information-support/podcasts/heat-sensitivity-and-ms Why do you keep needing to get up to go to the loo during the night? - information from The MS Trust: mstrust.org.uk/news/why-do-you-keep-needing-get-go-loo-during-night UK MS register: ukmsregister.org

    1h 5m
  7. Fear of falling with MS - and what to do if you do have a fall

    JUL 21

    Fear of falling with MS - and what to do if you do have a fall

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Worried about falling or unsure what to do if you do fall? You're not alone. Falls are a common concern for people living with multiple sclerosis. In this episode, expert physio Hilary Gunn breaks down why people with MS are more prone to falling. Discover how to spot the early warning signs and learn what steps to take if a fall occurs. We also delve into simple, effective strategies to build strength, boost confidence, and help you keep moving safely with MS.  Listen now to hear real life stories, expert information and more. Donate to the MS Trust to support this podcast - donate.mstrust.org.uk Episode notes Falls mstrust.org.uk/a-z/falls - information from MS Trust Balance mstrust.org.uk/a-z/balance  - information from MS Trust Will asks the expert about balance and dizziness mstrust.org.uk/information-support/podcasts/will-asks-expert-about-balance-and-dizziness - podcast from MS Trust Functional exercises to support everyday tasks mstrust.org.uk/information-support/exercise-ms/exercises-support-everyday-tasks - workout videos to help with getting up from the floor and balance  Before beginning any new exercise or activity, please consult with your GP or MS care team. If you experience pain or discomfort, stop immediately and speak to your physiotherapist. Always listen to your body and make choices that are right for you.

    1h 14m
  8. MS and relationships: balancing love and care

    JUN 12

    MS and relationships: balancing love and care

    Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39 Relationships can be complicated, even at the best of times.  When one partner is living with MS, it can bring a whole host of new challenges as well as opportunities for deeper connection. In this podcast, we explore the emotional and practical realities of supporting a partner with MS, and how couples can support each other through changing dynamics. Psychologist Dr Ashley Brown joins us to share practical advice on how to open up conversations around intimacy, emotional support, and shifting roles in a relationship. She offers tips to help both partners feel heard, valued, and connected. We also hear from Sophie and Delvin, a couple living with MS. Sophie shares her experience of living with multiple sclerosis, while Delvin reflects on his role as the partner who supports her. Together, they speak honestly about how their relationship has evolved, the challenges they’ve faced, and the ways their bond has strengthened. If you live with MS or support someone in their journey, this podcast offers practical tips, shared experiences and re-assurance that you’re not alone.  Listen now to hear real life stories, expert information and more. Donate to the MS Trust to support this podcast - donate.mstrust.org.uk  Episode notes Supporting someone with MS - information for carers - information from the MS Trust - mstrust.org.uk/information-support/care-and-carers/information-for-carers Caring for someone with MS - Podcast from MS Trust - mstrust.org.uk/information-support/podcasts/caring-someone-ms Anxiety and MS mstrust.org.uk/a-z/anxiety  Relationships and MS  mstrust.org.uk/news/expert/relationships-and-ms  MS and your emotions: mstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions Advance care planning - information from the MS Trust - mstrust.org.uk/a-z/advance-care-planning www.relate.org.uk a uk counselling service  www.gottman.com a website that offers a service designed to help couples overcome relationship challenges and enhance their communication www.cosrt.org.uk UK’s professional body dedicated to Psychosexual and Relationship Therapies

    1h 33m
See All (107)

Ratings & Reviews

4.9
out of 5
14 Ratings

About

Our podcast brings together a range of voices from the MS community to cover all aspects of life with multiple sclerosis. We know that living with MS can be life changing and can feel overwhelming at times. That’s why we’re here with you at each stage of the journey.Look, we know that we don’t have all the answers. But our podcast’s aim is to bring you the most up to date, trusted information from experts across the MS space including neurologists, therapists and researchers.Plus, hosts Helena and Nick hear real-life experiences from the MS community and find out your tips, tricks and the things that make you tick. We pose your burning questions to our experts and find out the information that you really want to know.Listen now for helpful information on symptoms, treatments, updates and a whole lot more.

Information

  • Creator
    MS Trust
  • Years Active
    2018 - 2025
  • Episodes
    107
  • Rating
    Clean
  • Copyright
    © 2025 The MS Trust podcast
  • Show Website
    The MS Trust podcast

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