At Peace Parents Podcast

Casey
  • 4.9 (463)
  • Parenting
  • Updated Weekly

The At Peace Parents Podcast is your source for all things related to understanding, supporting, accommodating, and advocating for your demand avoidant or PDA child. It will completely transform the way you think about your PDA child's brain, behavior, and parenting, and support you in finding your path to more peace and stability in the home. For more information see www.atpeaceparents.com

  1. 3d ago

    Why You're Walking On Eggshells: Cumulative Nervous System Activation And Your PDA Child Or Teen | Ep. 174

    Seven years ago I created a huge spreadsheet trying to find the cause of my son's meltdowns. How many hours outside, how many minutes on screens, how many calories eaten, and much much more. But I couldn't find a consistent pattern. Something that triggered him one day might be barely noticed another. The problem was, my logic was wrong. In this episode, an excerpt from our free Understanding PDA Masterclass, I explain why the standard ABC framework of antecedent, behavior, consequence fails for PDA children and introduce the cumulative nervous system activation model: how drops build in the bucket over weeks, months, and years toward a tipping point, and why what you do this week may determine whether your child can brush their teeth three weeks from now. Key Takeaways Why the Spreadsheet Did Not Work | 00:00:00 When my son went into burnout, I tracked everything: screen time, calories, sleep, fresh air, meltdown frequency. I was looking for the antecedent - the thing that happened right before the blowup - that would tell me the cause. What I now know is the reason the spreadsheet could not find the pattern is that the logic of the PDA nervous system is not event-based. It is cumulative. The antecedent is not the primary cause. It is the tipping point. The ABC Framework and Why It Does Not Apply to PDA | 00:01:45 The ABC framework - antecedent, behavior, consequence - is the foundation of most behavioral approaches in schools, therapy, and parenting. For some neurodivergent children it can be useful: the fluorescent lights went on, the meltdown followed, the consequence was leaving the room. For PDA children, the same surface-level event can produce completely different responses on different days, because the behavior is not caused by that event in isolation. It is caused by the cumulative level of nervous system activation that has been building in the system toward a threshold of tolerance over days, weeks, months, and in some cases years. TDrops in the Bucket Toward a Threshold | 00:03:19 I use a glass of water to illustrate the threshold of tolerance: the point at which cumulative nervous system activation tips past the window and begins to disable basic needs. Every subconsciously perceived loss of autonomy or equality is a drop. With a PDA child, we may have fifteen drops before we have even finished breakfast. Those drops build continuously, which is why burnout can feel sudden, especially for internalized PDA teens who masked successfully for years before suddenly being unable to leave their room. My son's escalation into burnout felt like an autistic regression because it was so rapid, but looking back, the drops had been building in the system for years without anyone seeing it. Why Behavior Fluctuates and Why That Makes It Hard to Trust the Disability Framework | 00:09:40 A PDA child may be able to brush their teeth at the beginning of the week but not by Friday. My older son's test scores drop between the start of the school year and the end, not because he has lost the skill or knowledge but because cumulative activation has made it harder to access. When things fluctuate like this, parents can doubt whether what they are seeing is really a disability, because the inconsistency does not match how we think disabilities look. This fluctuation is actually a feature of the cumulative model: accommodation brings activation down, and the child moves away from their threshold. Activation builds it back up. Two Out of Three Is Enough | 00:12:58 You do not have to accommodate perfectly for this model to work. Every accommodation removes a drop from the bucket. Every activation adds one. If your co-parent is not yet on board, your accommodations are still helping, just more slowly. If your child is in a school that is adding drops while you remove them at home, progress will be slower but not impossible. The practical implication is that what you do this week, this month, in the next three weeks, is directly connected to what you will see in basic needs access, nervous system reactivity, and connection and engagement a month from now. Relevant Resources Understanding PDA — The free masterclass from which this episode is excerpted, covering the full nervous system disability framework including the cumulative activation model and threshold of tolerance described here. Burnout — Free class with context for the burnout threshold I describe, including why escalation into burnout can feel sudden even when the activation has been building for years. Tracking Progress — Free class on how to track the three dimensions that reflect cumulative nervous system activation over time: nervous system reactivity, basic needs access, and connection and engagement. Paradigm Shift Program — My signature program where the cumulative activation model is applied practically, with live coaching to help parents identify where drops are being added and removed in their specific family system

  2. Jul 28

    Finding Meaning as a Parent of a Pathological Demand Avoidance Child or Teen | Ep. 173

    When autonomy is low, meaning has to be high. That is what I learned during the two years I spent as a full-time caregiver for my older son, isolated in our home, and putting myself physically between him and his eighteen-month-old brother when things got bad. In this episode I share how I found a sustaining "why" during that period, and how other families I have worked with have found theirs. I also introduce a practical tool I call the "hang your hat on the day" goal: a way of redirecting from goals that depend on another person's behavior to goals that are entirely within your own control, so that you can give yourself genuine credit for what you are doing every single day. Key Takeaways When Autonomy Is Low, Meaning Has to Be High | 00:00:00 Parenting a PDA child or teen introduces an almost constant rock-and-a-hard-place dynamic: every choice has a cost, and there is no option that gives you genuine autonomy without a trade-off. When you want to go to the gym, there is a cost when you come back. When your partner takes over for a few hours, there is a cost to their energy level. That sustained low autonomy is depleting in a way most people around us will never understand, and what I have found, from my own experience and across the families I work with, is that meaning is the variable that makes it sustainable. We need a "why" that gets us through the day. How I Found My "Why" in the Basement | 00:01:46 I was in the basement of our home in Michigan, putting myself between my older and younger sons when things got violent, feeling my own violent rage moving through me that I want to name as normal rather than shameful. My older son needed constant undivided attention and dopamine or he would go after his brother, and I was isolated, sensory overwhelmed, and out of resources. I had been reading Viktor Frankl's Man's Search for Meaning and had a seed planted about the idea that a clear why makes almost anything endurable. In that moment in the basement I realized: my entire doctorate had been on nonviolence and grassroots peace building and there I was, finally practicing it. Not theoretically. In my own basement. That was enough meaning to sustain me through that period. What Other Families Have Found as Their Why | 00:06:27 The meaning does not have to be mine. Across the thousands of families I have worked with, the sustaining whys have included: healing intergenerational trauma, becoming the parent they wished they had, practicing becoming a less judgmental person, learning non-reactivity as a skill, learning about disability and neurodiversity in a way that changes how they move through the world, and healing themselves through the relationship with their child. None of these are about outcomes for the child. They are about what the parent is becoming through the practice of showing up, which is the only part any of us actually controls. Why Goals That Depend on Your Child Will Undermine You | 00:08:29 One of the most consistent patterns I see across the families I work with, and in myself, is attaching goals to things another person has to do: my child will go back to school in the fall, my child will be independent by this age, my partner will come on board if I explain it clearly enough. When these goals drive our sense of progress, we are setting ourselves up for a particular kind of suffering, because we have no control over another person's nervous system or choices. The shift I ask parents to make is not to stop wanting those things. It is to stop basing today's measure of success on whether they happened. The Hang Your Hat on the Day Goal | 00:10:06 This is the practical tool that helped me through the most acute period of caregiving and that I return to now in harder seasons. The hang your hat goal is the one thing within your own control that you can point to at the end of a day and say: I did that. Some days it is "I showed up more regulated than I would have a year ago." Some days it is "I stayed in the PDA lens for most of the day even though I fell back into the old pattern at bedtime." Some days it is "I brushed my teeth, I ate enough to stay alive, and I did not scream at my kids." All of these count. None of them depend on what your child did. And giving yourself genuine credit for what you did, even when no one else can see it, is one of the most sustainable things you can do for your own nervous system over the long term. Relevant Resources Finding Meaning — Free class where I go deeper into the meaning-making framework described in this episode, including how to identify a sustaining why that is true for your specific life and journey. Burnout — Free class with context for the burnout period I describe, including the two years of intensive caregiving that led me to Viktor Frankl and the hang your hat goal. Paradigm Shift Program — My signature program where meaning-making, the hang your hat goal, and the full accommodation framework are practiced together across twelve weeks with live coaching and a community of families in the same season.

  3. Jul 21

    Shame, Power, and Pathological Demand Avoidance in Children and Teens with Dr. Gillian Boudreau | Ep. 172

    What does shame have to do with PDA? And why do behavioral approaches fail so consistently for this neurotype even when implemented well? I speak with Dr. Gillian Boudreau, a licensed clinical psychologist specializing in autism, ADHD, and anxiety across children, families, and adults, to explore the roles of shame and power in PDA children and teens. Dr. Boudreau draws on her early career supporting high-need autistic students in a school system, her psychodynamic training, and her work with families to explain why these children frustrate adults, why that frustration is data, and what it looks like to help parents construct a resilient narrative from a place of compassion rather than blame. Key Takeaways What the Adults Around PDA Children Are Feeling and Why It Matters | 00:12:00 In her second year supporting high-need students in a school system, Dr. Boudreau shifted from behavioral interventions to asking the adults on the team a different question: what is this child bringing up in you? The answers were consistent: I feel like I don't know what I'm doing, I feel powerless, I feel like I'm going to lose control. Through a psychodynamic lens, clients often make helpers feel the very way they feel inside and cannot express. When the adults named their own feelings of shame and powerlessness, and the team began offering children more autonomy and genuine collaboration before demanding compliance, the big behaviors began to shift in ways that star charts had not produced. Shame Is at the Root on Both Sides | 00:52:00 PDA children often carry years of cumulative shame - due to numerous factors - and w hen a child in that much pain escalates, adults respond from their own activated shame response. This produces a shame-blame cycle that makes everything worse. Hurt People Hurt People | 01:00:00 One of the most common fears parents bring to Dr. Boudreau is whether their child has empathy, whether they are raising someone who will become abusive. Her response is direct: true sociopathy is extraordinarily rare, and PDA nervous systems are characterized by overactive fear and often hyperempathy. She uses an example from my own family to illustrate radical empathy as a clinical stance: if a child locked someone in a basement, the question to ask is not what is wrong with this child, but what level of threat must they have been perceiving in their body to do that? Why PDA Children Cannot Help But Call Out Arbitrary Power Structures | 01:05:39 Dr. Boudreau describes PDA as a nervous system that is exquisitely sensitive to the emotional electricity of agenda and control. From an evolutionary perspective, she suggests that the presence of PDA across the population may serve a function: some nervous systems are wired to detect and resist arbitrary or exploitative power dynamics that others have learned to tolerate. The problem is not the sensitivity. The problem is that schools and many family systems are not built to respond to it without escalating into shame cycles. What Parents Need Most: A Resilient Narrative and Permission to Grieve | 01:15:15 When Dr. Boudreau works with parents of PDA children, she starts by helping them catch their own shame response at the root before it cycles back toward the child. She holds space for grief, including grief for the life and the parenting experience that was expected. She also shares what she knows from seeing many PDA journeys longitudinally: this will likely turn out to be pretty cool at some point. The goal is not to minimize the hardship but to help parents construct a narrative that has room for the full palette of human emotion. Relevant Resources Clear Connection Psychology on Instagram — Dr. Gillian Boudreau's Instagram where she shares content and resources on emotional safety, connection, and supporting all brains and hearts across children, families, and school systems. PDA North America: PDA-Affirming Providers Directory — A directory of PDA-affirming providers maintained by PDA North America, referenced in this episode as a resource for families looking for clinicians who understand the PDA profile. Turning Passive Into Active: A Building Block of Ego and Fundamental Mechanism of Defense — Reference document on the concept Dr. Boudreau introduces in this episode as the psychological term underlying what I call equalizing behavior in PDA children and teens. Understanding PDA — Free class where I teach the nervous system disability framework and the neuroception logic that underlies the shame and power dynamics Dr. Boudreau describes in this episode. Burnout — Free class with context for the burnout period I describe in this episode, including the six months with my younger son and why the shame-blame cycle is most dangerous when a child is deepest in burnout.

  4. Jul 14

    Why Lowering Demands May Not Be Enough For Your PDA Child | Ep. 171

    If you've lowered demands for your PDA child or teen but still aren't seeing much progress, this episode is for you. It explains one of the most common sticking points I hear from families: that due to the name - Pathological Demand Avoidance - parents focused on lowering demands, when what their child needs more is increased autonomy and equality. This episode is an excerpt from my free Understanding PDA Masterclass. In it I walk through the distinction between demands as a surface-level behavior and autonomy and equality as the root-level mechanism. To help make the difference clear, I describe how in a typical morning autonomy losses often accumulate before a child even gets out the door. Key Takeaways Demands Are the Surface. Autonomy Is the Root | 00:00:00 The name Pathological Demand Avoidance points toward the behavior: avoidance of demands. But if we think about PDA as a pervasive drive for autonomy, we get closer to the actual mechanism. Parents who have lowered demands and are not seeing progress are often still inadvertently signaling a loss of autonomy through expectation, energy, agenda, or position of authority, even when the demand itself has been removed. The surface level behavior is demand avoidance. The root level cause is neuroception of a loss of autonomy or equality. My Younger Son's School Refusal: The Autonomy Mechanism in Real Time | 00:01:33 For two weeks, my younger son could not get his body to go to school. Each evening he would tell me he genuinely wanted to go the next morning, naming specific things he looked forward to. When I asked whether he would like me to prompt him in the morning, he said no, because if you do, then I will not go. That is the PDA mechanism: in his thinking brain, with full autonomy and no external expectation, going to school felt possible. The moment an agenda or a prompt from me entered, his amygdala would register a loss of autonomy, activate the threat response, and make going impossible. A Morning Audit: Fifteen Activations To Start The Day | 00:06:02 I walk through a typical first hour of a day with a PDA child to illustrate how many autonomy and equality losses can accumulate before the family has even left the house. Being woken up by a parent or an alarm is an externally imposed loss of autonomy. Being expected to come downstairs, eat, eat in a particular place, be told what is and is not available for breakfast, clean up the plate, get dressed, put on shoes, pack a backpack, receive a gentle correction after pushing a sibling on the way to the car: each one registers in the amygdala as a threat event. In a loving, gentle household with no intentional pressure, there can be fifteen or more of these activations in forty-five minutes. That cumulative load is what makes PDA disabling, not any single demand. Equality Is as Important as Autonomy | 00:04:50 The equality piece is often underemphasized. It includes any energy of another person being above the PDA child in stature, authority, or position: not getting the most ice cream, not being first down the stairs, not getting the last word, having a parent try and teach them something in the moment of a behavior. Even gentle parenting's recommendation to take the child aside after a dysregulation and debrief produces this perception, because the parent is placing themselves above as the teacher and the explainer. The child is not in the right part of their brain to receive it, and the teaching itself is perceived as another activation. Relevant Resources Understanding PDA — The free masterclass from which this episode is excerpted, covering the six characteristics of PDA including the survival drive for autonomy and equality described here. Burnout — Free class with context for how cumulative autonomy losses build over time to the point of disabling access to basic needs. Paradigm Shift Program — My signature program where the shift from a demand lens to an autonomy and equality lens is practiced as an embodied skill over twelve weeks of live coaching.

  5. Jul 7

    Using the PDA Lens to Change Your Parenting With Pathological Demand Avoidance | Ep. 170

    This episode is an excerpt from a lesson inside the Paradigm Shift Program. I'm sharing it because the PDA lens is the foundation that all other skills in my work rest on, and it is not something most parents are going to hear explained anywhere else. In this lesson I walk through exactly what the PDA lens is, why it has to be learned as a skill rather than just understood intellectually, and how to begin applying it. I also address the most common thought that comes up when I introduce the concept of deliberately signaling equality: am I training my child to be a bad adult? And why the answer, through the logic of this lens, is no. Key Takeaways The PDA Lens Is a Skill, Not the Only Valid Lens | 00:00:00 The PDA lens is something I think of as a pair of glasses you can put on and take off. It does not invalidate the ADHD lens, the sensory lens, the OCD lens, or the anxiety lens. It teaches a different logic, one that most parents are not going to hear explained anywhere else because every professional encounter tends to frame the root cause through a different paradigm. Every Loss of Autonomy Is a Drop in a Bucket, Invisible Until the Tipping Point | 00:01:31 The PDA lens asks us to look at every behavior, even if it looks manipulative or intentional, and think: my child has been perceiving threat around not having autonomy or being below someone or something, over and over, and every time that happens, a drop goes into the cumulative nervous system activation bucket. Most of those drops are invisible because high masking, the internalization of the threat response rather than the behavioral expression of it, is a feature of PDA. The accumulation builds over days, months and years. By the time most families arrive at my work, the child is either very close to their threshold of tolerance or so far past it that they are existing in a near-constant state of threat. Equalization, Basic Needs, and Why Behavioral Strategies Cannot Work | 00:06:41 When cumulative activation reaches the tipping point, the nervous system tries to exert control and move above in order to get back to felt safety. This is equalizing. And control tends to coalesce around the one or two things a parent genuinely cannot force: eating, toileting, sleep, hygiene. Because this is subconscious, cumulative, and not under their conscious awareness, behavioral strategies do not work. Signaling Equality Without Removing All Boundaries | 00:11:39 The equality signal does not mean there are no limits in the home and the child runs everything. It means thinking creatively about how to deliberately, mindfully, and as an accommodation give a child or teen the felt experience of being above, of going first, of being more skilled in this moment, in order to offset years of subconsciously perceiving that they are below. You Will Know More Than the Professionals You Work With | 00:10:09 This is not a criticism of professionals. It is a reality of where the PDA research and understanding currently sits. Most clinicians, teachers, and therapists have been trained through a behavioral paradigm that assumes behavior is rational, conscious, and changeable through incentives and disincentives. The PDA lens is a fundamentally different paradigm and it is not (yet!) taught in most training programs. Relevant Resources Understanding PDA — Free class where I teach the nervous system disability framework and the root cause logic that the PDA lens described in this episode is built on. Tracking Progress — Free class on how to observe the three outcome dimensions, nervous system activation, basic needs, and engagement, referenced in this episode as the data to watch rather than the behaviors to fix. Paradigm Shift Program — My signature three-month program where the PDA lens introduced in this excerpt is practiced as an embodied skill across twelve weeks of live coaching, spot coaching, and community support.

  6. Jun 30

    Addictive Behaviors and the Nervous System in PDA: A Conversation With Jan Winhall | Ep. 169

    When I first heard Jan Winhall speak about the intersection of the nervous system and addiction, I immediately thought of the PDA teens and adults in our community who are reaching for substances or engaging in self-harm. In this episode she explains how addiction and self-harm function as nervous system state regulation strategies, what conventional models get wrong, and what it actually looks like to support someone through this from a place of safety rather than shame. Winhall brings a wealth of knowledge to the conversation as a trauma and addiction psychotherapist, developer of the Felt Sense Polyvagal Model, and author of two books on treating trauma and addiction through embodied awareness. I hope her insights support you. Key Takeaways Addiction as a Nervous System State Regulation Strategy | 00:06:52 The conventional model frames addiction as either a moral failure or a brain disease. Jan offers a third understanding grounded in polyvagal theory and neuroplasticity: addictive behaviors are strategies the body uses to shift nervous system states when there is not enough perceived safety. When someone is in a chronic sympathetic state, the wine bottle or the substance moves them into dorsal, into numbing and relief. When someone is in a chronic dorsal state, high-risk or stimulating behaviors move them back up into sympathetic mobilization. The body cycles between these states because it cannot stay in either extreme indefinitely. The behaviors become addictive because they work, at least in the moment, and because there is no other available path to felt safety. What Cutting and Self-Harm Do in the Nervous System | 00:10:05 Self-harm functions within the same trauma feedback loop. Cutting can release a sympathetic surge when the blood appears, which shifts a person out of dorsal numbness. It can also trigger the release of endogenous opioids that bring the body back down into dorsal relief. The person is not being manipulative or seeking attention. They are doing what their nervous system has learned will shift an unbearable state into something survivable. Jan describes working with women in her first job who were all self-harming, all addicted, and all diagnosed with borderline personality disorder. She did not accept that framing then and still does not. What she saw was a population of trauma survivors whose bodies were doing exactly what bodies are designed to do. Not Being Seen Is Traumatic | 00:37:30 Jan describes the privileged neurodivergent teenagers she saw in her clinical work who came to her saying I have everything, why am I like this? What they were experiencing, she explains, is the trauma of not being seen and fully delighted in for exactly who they are. What Healing Actually Looks Like With a Teen | 00:43:21 Jan describes her clinical work with teens as beginning with co-regulation and the building of a relationship where the teenager feels genuinely safe. That means meeting them where they are, including the sessions where they spend the entire hour talking about how much they did not want to come. It means creating an environment where they can say anything as long as they are respectful of the basic boundaries. It means finding something to fall in love with in the person sitting across from you, because that delight is the container in which a teen can begin to explore shame, identity, and the behaviors they have been hiding from everyone else. Neuroception, Interoception, and the Paradigm Shift | 00:22:55 Interoception is the body's capacity to sense what is happening from the inside: the tightness in the chest, the quickening of breath, the feeling of something that has not yet found words. Jan's Felt Sense Polyvagal Model combines polyvagal theory with a body-based practice to help people slow down enough to listen to what is already happening in the body rather than suppressing or bypassing it. Relevant Resources Felt Sense Polyvagal Model Institute — Jan Winhall's institute where she teaches the Felt Sense Polyvagal Model internationally, including graphic models of the nervous system that can be downloaded and used with children and families. Somatic Mondays With Jan Winhall — Monthly community gathering focused on nervous system regulation for people navigating addiction and recovery, hosted by Jan Winhall and Recovery Reimagined. Dr. Sean Inderbitzen on LinkedIn — Autistic therapist, parent, and author of two books on polyvagal theory and autism, referenced by Jan Winhall in this episode as a recommended resource for neurodivergent families. Understanding PDA — Free class where I teach the nervous system disability framework and the polyvagal concepts that underlie the addiction and self-harm patterns Jan describes in this episode. Burnout — Free class with context for the dorsal shutdown and burnout states that Jan's work helps illuminate, particularly for families whose teens are reaching for substances or engaging in self-harm. Paradigm Shift Program — My signature program where the nervous system framework, felt safety, and the accommodation toolkit are taught live, creating the kind of co-regulated container Jan describes as foundational to all healing.

  7. Jun 23

    Understanding the Root Cause of Pathological Demand Avoidance and Equalizing Behavior | Ep. 168

    In this episode I share the definition of PDA I use: PDA is a survival drive for autonomy and equality that consistently overrides other survival instincts, including eating, sleeping, toileting, hygiene, and safety. I explain how this is different from older definitions that consider PDA to be anxiety driven, and why that distinction matters clinically and practically. I also I introduce the concept of equalizing - the behavioral expression of the disability that extends well beyond demand avoidance into physical, verbal, and relational patterns that can look like manipulation, control, or defiance but are actually a nervous system response. Key Takeaways Why the Definition of PDA Matters: Survival Drive vs. Anxiety | 00:02:05 The original framing describes PDA as an anxiety-driven need for control. Anxiety is a future-oriented cognitive experience, and that framing points clinicians and parents toward exposure therapy, medication for anxiety, and pushing through avoidance. My definition is different. PDA is a survival drive for autonomy and equality that operates on a subconscious level, in the nervous system, before conscious thought. A child can love their grandparent, be emotionally attached to their therapist, and genuinely want to go to football practice, and still be accumulating nervous system activation from losses of autonomy throughout all of those experiences. The drive does not require cognitive anxiety to be present. That distinction changes what we do about it entirely. The Survival Drive That Overrides Everything Else | 00:07:35 What makes PDA neurologically distinct, in my conceptualization, is that the survival drive for autonomy and equality can override other basic survival instincts. I share an example from my own life: telling Cooper to stay away from the fire, gently at first, then with more urgency, and watching him move toward it instead of away, then try to jump in. I have also worked with families where a child accelerated into a body of water - without the ability to swim - after being told to stay back. These are extreme examples I use to illustrate the mechanism, not to suggest this is every family's experience, but they show that the PDA nervous system can prioritize autonomy above the instinct to stay safe, which is what can eventually produce the feeding tubes, the selective mutism, and the basic needs collapses that many families in this community have experienced. What Equalizing Is and Why It Looks Like Manipulation | 00:12:31 Equalizing is a nervous system response to get back to a place of perceived equality - or above another - after a loss of autonomy has been registered. It can be physical: disorganizing something that was orderly, knocking things off tables, touching things impulsively, hovering near a sibling, controlling where a parent can sit or look. It can be verbal: correcting words, redirecting blame, pretending not to hear, changing the topic impulsively, lying about things that seem random. It can be directed at a safe person, at a sibling, at objects in the environment, or even at self. The Spices Example: PDA Versus Other Neurotypes | 00:17:11 I use a simple scenario - organizing kitchen spices - to distinguish PDA equalizing from behavior in other neurotypes, inclduing non-PDA autism, OCD, and anxiety. Equalizing Can Be Subtle Until It Escalates | 00:15:36 As cumulative activation builds and the environment continues to signal losses of autonomy without accommodation, these equalizing expressions can escalate toward the large nervous system responses and basic needs struggles I describe in this episode. The goal of everything I teach is to bring down that cumulative activation so families avoid these challenges, or get through them as quickly and smoothly as possible. Relevant Resources Understanding PDA — Free class where I teach the nervous system disability framework, the neuroception mechanism, and the cumulative activation logic introduced in this episode. Burnout — Free class with context for how the survival drive overriding basic needs leads to the burnout state many families are already in when they find this work. Paradigm Shift Program — My signature program where the full framework for understanding PDA, equalizing, and responding to both is taught across twelve weeks of live coaching.

  8. Jun 16

    Individualized Education Plan (IEP) Advocacy for Pathological Demand Avoidance with Dr. Destiny Huff | Ep. 167

    If you are a parent who cannot unschool or homeschool your PDA child, or who needs practical support navigating the school system, this episode is for you. I am joined by Dr. Destiny Huff, a licensed professional counselor, non-attorney special education advocate, and neuro-affirming trainer who is also late-diagnosed autistic and ADHD and a mother of neurodivergent children. Dr. Huff shares the most common patterns she sees as PDA families navigate schools, how she frames the nervous system lens in IEP meetings, the specific accommodations she advocates for most consistently, her approach to functional behavioral assessments, and practical steps parents can take right now. Key Takeaways Two Patterns Dr. Huff Sees Advocating for PDA Families | 00:05:06 The first is families who have learned about PDA but are still defaulting to the demand avoidance frame when explaining it to schools, which makes it easy for administrators to push back by saying the child just needs to deal with demands. The second is schools latching onto the term PDA itself, either saying they do not recognize it or using it superficially, without understanding the nervous system mechanisms underneath it. Dr. Huff's approach is to move past the label entirely and focus on the root cause: what is happening in the nervous system, what does dysregulation look like for this specific learner, and what changes in the environment and approach can support access and safety. How to Frame the Conversation in an IEP Meeting | 00:13:53 Dr. Huff focuses on three areas that school staff are almost never formally trained on: sensory needs, communication access when regulated and dysregulated, and executive functioning, of which regulation is a component. She always starts with a profile letter that describes the whole learner before getting into accommodations or concerns, and she prefers working with teachers directly because they are often the most unheard people in the room and the most open to trying something new when asked what they are actually seeing. Accommodations Dr. Huff Advocates for Most Consistently | 00:29:43 The first is declarative language, documented with a concrete example of what it actually looks like in practice, because most teams have heard the term but are not using it correctly. The second is a nonverbal communication plan, for when the learner is dysregulated, that could include a designated safe space and trusted person, identified by the learner rather than assigned by the school, paired with a low-profile signal like a hand gesture or an email so the learner can access that space without drawing attention. Her Approach to Functional Behavioral Assessments | 00:40:11 Dr. Huff sees FBAs as useful primarily because they reveal the school's perception of the learner, even when the terminology reflects a behavioral lens she does not share. Once she understands what the school believes is driving the behavior, she goes into rewrite mode with her families: adjusting the language, shifting the approach toward relationship, safety and trust, and pushing back on behavior intervention plans that default to token economies and compliance strategies. What to Do When a Child Is Too Burned Out to Access School | 00:37:27 Dr. Huff has successfully advocated for truncated days and reduced schedules. Her consistent position is that a reduced schedule does not let the school off the hook for providing free and appropriate public education, but it does acknowledge where the child's nervous system is right now and creates a starting point that can be adjusted over time based on what is actually working. Relevant Resources Your FBA Is a Fantasy — Book by Rick and Doris Bowman on how to approach functional behavioral assessments through a trauma-informed, neuro-affirming lens rather than a behavior modification lens, recommended directly by Dr. Huff in this episode. Collaborative & Proactive Solutions — Ross Greene's framework for addressing the root causes of challenging behavior through collaboration rather than compliance, referenced by Dr. Huff as a resource for reframing FBAs. The Affirming Village Podcast — Podcast hosted by Dr. Destiny Huff and Lisa Baskin Wright on neuro-affirming approaches to education and parenting. Neuro-Affirming Special Education Handbook — Dr. Huff's book on navigating special education in the US from a neuro-affirming standpoint, including guidance on IEPs, FBAs, and supporting PDA learners. Advocacy and Consultation With Dr. Destiny Huff — Dr. Huff's direct services for families, including IEP meeting attendance, drafting parent input statements, and consultation on supporting PDA and neurodivergent learners in schools. Dr. Destiny Huff on Instagram — Follow Dr. Huff for ongoing content on neuro-affirming special education advocacy, IEP navigation, and supporting neurodivergent learners in schools. PDANA - Dr. Destiny Huff is board member of PDA North America. Paradigm Shift Program — My signature program for parents of PDA children and teens taught across twelve weeks of live coaching.

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The At Peace Parents Podcast is your source for all things related to understanding, supporting, accommodating, and advocating for your demand avoidant or PDA child. It will completely transform the way you think about your PDA child's brain, behavior, and parenting, and support you in finding your path to more peace and stability in the home. For more information see www.atpeaceparents.com

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    Casey
  • Years Active
    2022 - 2026
  • Episodes
    174
  • Rating
    Explicit
  • Copyright
    © 2023 At Peace Parents Podcast
  • Show Website
    At Peace Parents Podcast

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