Lichen Sclerosus Podcast

Kathy Ruiz-Carter

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

  1. May 7

    Finding Hope When the Road Isn't Straight

    If you’ve disclosed your LS to someone and they brushed it off, that isn’t on you—it’s on them. Because when you share this, you are giving them a gift. In this crossover episode, Kathy joins Penny Petersson from the Pelvic Power Podcast for a conversation that goes far beyond medical facts. They dive into the "juicy" reality of living with LS: the sting of medical gaslighting, the fear of being vulnerable with a new partner, and the exhaustion of trying to coordinate your own care when doctors won't talk to each other. Kathy and Penny discuss why community is the antidote to the "isolated" feeling of a new diagnosis and how to find the "diamonds in the sh*t" even during a flare. In This Episode, We Discuss:The "Special" Connection: Why opening up about your vulvar health is an act of courage and how to handle people who don't treat that vulnerability with the care it deserves.Medical Gaslighting: The reality of being dismissed by providers and the specific research being done right now to help patients fight back.Taming the Beast: Why your diagnosis today is not your destiny in six months, and how to "keep moving" so you don't get stuck in the cycle of inflammation and stress.Practice Makes Progress: Why Kathy is bringing role-playing and advocacy scripts to this year's summit (because being a "baddie" takes practice). Resources & Links:Connect with Penny Petersson Follow Penny for pelvic yoga and pain management: @wellbeingbypenny on InstagramListen to more of the Pelvic Power Podcast on your favorite platform.Spotify: https://open.spotify.com/show/5L5EST5vW5qbgcEhLfvqLDYouTube: https://www.youtube.com/watch?v=YWZ9pZYm7r8 Take the Next Step with LSSN WHS 2026 (May 11–15): If this conversation hit home, join us for the Wholistic Healing Summit. We have specific sessions on Medical Gaslighting Scripts and Advocacy Breakout Rooms to help you practice the conversations we talked about today.Choose Your Pass: From the Free Pass to the All-Access Pass (which includes the lifetime "LS Wikipedia" library Kathy mentioned), find the level of support you need. 👉 Register for the Summit Here https://lssupportnetwork.org/whs Join the Community LS Warriors: Our private, recurring donor community for those who want to skip the "late-night search spiral" and get straight to expert-backed answers. 👉 Become a Warrior https://lssupportnetwork.org/membership Give yourself reliable guidance: Join the summit and stop guessing about your care. https://lssupportnetwork.org/whs

    26 min

  2. 02/07/2025

    New Hope for Lichen Sclerosus: Insights from Silicone Treatment Studies

    Episode Description: Welcome to the Lichen Sclerosus Podcast brought to you by the Lichen Sclerosus Support Network. I'm your host, Kathy, and today we’re excited to bring you a conversation with an amazing researcher, Leia Mitchell. If you’ve listened before, you might recognize her from past episodes. This time, we’re diving into a new possible treatment for Lichen Sclerosus. What You’ll Learn in This Episode: Insights into two groundbreaking studies on silicone-based treatments for Lichen Sclerosus.The science behind silicone’s effects on collagen production and skin rejuvenation.What makes this new treatment non-steroidal and why that matters.Eligibility requirements and what participation in the study entails. Special Guest: Meet Leia Mitchell, a passionate and knowledgeable physician assistant with extensive experience in Lichen Sclerosus treatment and clinical research. Her expertise and dedication make her a valuable voice in the LS space. Key Moments: 1:49 – Discussion of two studies: one completed and one actively recruiting participants in Florida, DC, and NYC.3:35 – Leia explains how silicone aids collagen production and benefits skin conditions, including burn victims.5:21 – Application process: The silicone gel is easy to use—dab and rub gently over affected areas.6:26 – Leia highlights the need for effective LS treatments and shares how she became involved in the study.7:14 – The appeal of non-steroidal treatments and how Leia encountered this promising solution.9:24 – Study requirements: participants must have an active LS diagnosis, abstain from steroids or other topicals, and undergo pre- and post-study biopsies.13:10 – The study is initially limited to five participants, but a larger trial may follow pending positive results.15:09 – Leia shares her excitement for the study’s potential outcomes and outlines the 10-week process, which includes subjective results announced after publication.34:01 – Leia discusses the goal of FDA approval to make the treatment accessible and affordable for patients through insurance coverage. Connect with Us: Visit the Lichen Sclerosus Support Network for more resources: lssupportnetwork.org Get more information on the study at https://clinicaltrials.gov/study/NCT06662942?cond=stratamgt&rank=2 or email the CVVD at research1.cvvd@gmail.com Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    41 min

  3. 12/09/2024

    The Future of LS Care: A Conversation with Dr. Jill Krapf

    Join us for an insightful conversation with Dr. Jill Krapf, a leading expert in vulvar lichen sclerosus (LS), as we discuss the challenges and opportunities in LS care and introduce the Provider Continuous Education Program (PCEP). Why Provider Education Matters: LS is often misdiagnosed or diagnosed late, leading to years of unnecessary suffering for patients.   Many healthcare providers lack the knowledge and training to properly diagnose and manage LS.   The PCEP will equip providers with the tools and resources they need to provide effective, patient-centered LS care.   How the PCEP Will Make a Difference: The PCEP will provide comprehensive education on LS, covering diagnosis, treatment, and patient communication.   It will feature expert-led training by experienced LS specialists.   It will focus on evidence-based practices and patient-centered care.   It will create a network of knowledgeable healthcare providers who can support each other and share best practices.   Call to Action: Support the PCEP and help us transform the future of LS care. Your donation will directly impact the lives of those affected by this often-misunderstood condition. Donate to LSSN's Campaign: https://lssupportnetwork.org/givingtuesday Additional Resources: Learn more about LSSN's programs and resources: https://lssupportnetwork.orgJoin LSSN's online community: https://lssupportnetwork.org/membershipAttend LSSN's Giving Tuesday live events: https://lssupportnetwork.org/givingtuesday Thank you for listening and for your support! Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    55 min

  4. 12/03/2024

    Break the Cycle of Suffering This 2024 GivingTuesday

    Join us for a special Giving Tuesday episode where we discuss the importance of supporting the Lichen Sclerosus Support Network (LSSN) and their mission to end the misdiagnosis and suffering caused by lichen sclerosus (LS). In this episode, you'll learn about: The challenges of living with LS and the impact of misdiagnosis.   The importance of patient education and support in managing LS.   The LSSN Provider Continuous Education Program (PCEP) and how it will improve healthcare provider knowledge and patient care.How your donations can help LSSN continue to provide vital resources and support to the LS community. Support LSSN this Giving Tuesday and help us break the cycle of suffering for people with LS. Your generosity can make a real difference in the lives of those affected by this often misunderstood condition. Resources and Links: Donate and Attend LSSN's Giving Tuesday Event: https://lssupportnetwork.org/givingtuesdayHelp LSSN raise money without disclosing your diagnosis: https://docs.google.com/document/d/16hoqesjqg_n68QGkGQPHAh0EYrZME1CH0NfVGNMVksQ/copy?usp=sharingLearn more about LSSN's programs and resources: https://lssupportnetworkJoin LSSN's online community: https://lssupportnetwork.org/membershipBecome an LSSN volunteer: https://lssupportnetwork.org/volunteer Thank you for listening and for your support! Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    50 min

  5. 04/29/2024

    Communication, Vulnerability, and Sex Positivity Transform an LS Relationship

    If you're feeling the weight of unresolved issues in your intimate relationship, then you are not alone! Couples often struggle to communicate openly about sex and intimacy, leading to frustration and distance instead of connection. But what if there's a way to enhance your communication and connection, even in the midst of challenges? Let's dive into the journey of a couple navigating the complexities of long-term relationships and discover the transformative power of open dialogue and shared experiences. In this episode, you will be able to: Gain insights into managing pelvic floor dysfunction in individuals dealing with Lichen Sclerosus for better everyday comfort and confidence.Explore strategies for maintaining sexual intimacy while managing Lichen Sclerosus to nurture connection and closeness with your partner.Learn how to provide meaningful support to partners coping with Lichen Sclerosus, fostering empathy and understanding in the relationship.Enhance communication about sexual health in long-term relationships, fostering a deeper emotional and physical connection with your partner. My special guests are Annie and Micheal Annie and Michael bring a unique perspective to the conversation as a couple navigating the challenges of living with Lichen Sclerosus. Annie's personal journey with LS, from dealing with misdiagnosis to undergoing a biopsy, provides a firsthand understanding of the physical and emotional toll this condition can take. Michael, as a supportive partner, shares his experiences of navigating the impact of LS on their intimate relationship and the communication challenges they faced during this time. Their honest and open dialogue sheds light on the complexities of managing LS within a long-term relationship, making their insights valuable for others in similar situations. The key moments in this episode are: 00:00:00 - Introducing Annie and Michael 00:02:22 - Annie's LS Journey 00:08:25 - Biopsy Process and Support 00:13:02 - Communication and Relationship 00:15:55 - Medical Diagnosis and Initial Concerns 00:17:43 - Age and Diagnosis 00:19:06 - Diagnosis Confirmation and Frustrations 00:23:26 - Partner's Involvement and Education 00:26:35 - Medication Side Effects and Treatment Adjustments 00:30:20 - Advocating for Yourself 00:32:30 - Importance of Education for Doctors 00:36:06 - Impact on Relationships 00:39:37 - Transformation through Communication 00:43:47 - Coping with Stress and Loss 00:45:05 - The Importance of Communication in Relationships 00:47:17 - Broadening Perspectives on Intimacy and Sex 00:51:27 - Seeking Support for Partners and Caregivers 00:55:43 - Journey to Healing with Dr. Bob 00:58:52 - Excitement for the upcoming summit 00:59:27 - Doctor Bab's thorough care 01:00:53 - Virtual visits with Doctor Bab 01:01:37 - Open communication about sex 01:02:38 - Summit topics and invitation Register for the Holistic Healing Summit from May 13th to 17th at lssupportnetwork.org to gain valuable insights and information on intimacy, communication, sexual intimacy, and emotional intimacy in the context of Lichen Sclerosus.Explore the book Sex Talks: The Five Conversations That Will Transform Your Love Life by Vanessa Marin for valuable guidance on enhancing intimacy and communication in your relationship. https://www.amazon.com/Sex-Talks-Five-Conversations-Transform/dp/1668000016Connect with Dr. Babb, a vulvar specialist, for thorough examinations and expert guidance on managing Lichen Sclerosus. Virtual visits are also available for those who are not local. https://havencenter.comExplore the SweetSpot Labs body wash and other products recommended by Annie for gentle care of the skin, especially for those with Lichen Sclerosus. https://shop.sweetspotlabs.com/ Check out all the ways Lichen Sclerosus Support Network can help you at lssupportnetwork.org. Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    1h 3m
  6. Live Lichen Sclerosus and Sexual Wellness Panel Replay

    04/22/2024

    Live Lichen Sclerosus and Sexual Wellness Panel Replay

    Bonus Alert until April 28: Check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs Join us for this informative panel discussion on lichen sclerosis and sexual health. Hosted by Kathy Ruiz-Carter, we have a talented group of experts: patient advocate Jaclyn Lanthier, gynecologist Dr. Suzanne Weber, and pelvic health physical therapist Dr. Mamawah Bourque. We cover key topics like LS treatment and management, tips for engaging in sexual activity, managing symptoms during menstruation, considerations around pregnancy, and more. The panel shares practical guidance grounded in both clinical expertise and lived experience. You'll discover helpful insights on using steroids, alternate therapies, dilator work, lubricants, vulvar care, pelvic floor health, open communication with partners, and listening to your body's needs. We also talk about emerging research on LS progression and hormonal connections. Whether newly diagnosed or a long-time LSer, you'll find empowering takeaways to improve your sexual health and approach LS management more holistically. We hope you feel encouraged in your journey toward remission and pain-free intimacy. Let us know in the comments what resonated most or what additional questions you have! And don't forget to check out the bonus 14 video replays from past summits that come with the Wholistic Healing Summit All-Access pass. https://lssupportnetwork.org/whs In this episode, you will be able to: Understand how to manage lichen sclerosus during pregnancy for a smoother journey.Discover practical tips for maintaining sexual health while dealing with vulvar lichen sclerosus.Learn effective strategies for comfortable bike riding despite lichen sclerosus symptoms.Explore the benefits of pelvic floor therapy in managing lichen sclerosus symptoms.Uncover the hormonal effects on lichen sclerosus symptoms and how to mitigate them. My special guest is Jaclyn Lanthier, Suzanne Weber, and Mamawah Bourque. The key moments in this episode are: 00:00:00 - Introducing the National Vova Awareness Day event. 00:03:24 - LS progression and management. 00:07:33 - Natural and maintenance options for LS treatment. 00:12:07 - Treating different areas of the g******s. 00:15:26 - Personalized application of treatment. 00:16:32 - Importance of Physical References 00:17:51 - Engaging in Sexual Activity with LS 00:21:16 - Transitioning from Dilator Work to Penetration 00:23:54 - Approaching Sexual Activity with LS 00:28:24 - Managing Pain and Burning After Sexual Activity 00:32:42 - Managing Burning Sensation and Pain after Sex 00:33:50 - Wholistic Healing Summit 00:34:58 - Gynecologist Approach to Burning Sensation and Pain after Sex 00:36:09 - Enhancing Genital Arousal and Lubricant Recommendations 00:42:59 - Impact of Lichen Sclerosis on Pregnancy 00:49:02 - Perineal Massages and Breathing Techniques during Pregnancy 00:52:21 - Impact of BLS on Pregnancy and Postpartum 00:54:27 - Menstruation and LS Symptoms 01:00:58 - Hormonal Component and Moisture Management during Menstruation 01:03:18 - Treating Anal LS and Anal Fissures 01:05:32 - Managing Anal LS Symptoms 01:08:36 - Tips for Bike Riding with LS 01:11:05 - Pelvic Floor Stretches 01:13:19 - Wholistic Healing Summit 01:14:19 - Gratitude and Farewells The resources mentioned in this episode are: Get your ticket for the all-access pass to the Wholistic Healing Summit to access exclusive sessions on managing LS symptoms, including pain-free sex, pelvic floor PT, and more. https://lssupportnetwork.org Join the Wholistic Healing Summit to gain valuable insights on how to navigate relationships and have conversations about LS with partners, family, friends, and employers. Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    1h 15m
  7. Rebuilding Relationships and Reconnecting with Lichen Sclerosus

    04/17/2024

    Rebuilding Relationships and Reconnecting with Lichen Sclerosus

    Topics: What is the LSSN Wholistic Healing Summit?Importance of addressing relationships affected by Lichen Sclerosus (LS)Summit focus: Partners, Caregivers, and DisclosureSessions for patients, partners, and caregiversWellbeing activities for stress managementOpportunities to connect with other attendees Key Points LSSN is a non-profit patient organization providing education and support for those with LS.LS impacts all aspects of life, including relationships.The summit helps patients, partners, and caregivers discuss LS, manage sexual health, and build intimacy.Free, Value, and All Access ticket options are available. Time Stamps 00:00:00 - Introduction to Holistic Healing Summit 00:02:36 - Challenges in Talking About LS 00:04:38 - Disclosing LS to Partners 00:08:45 - Supporting Caregivers of LS Patients 00:10:07 - Managing LS Symptoms and Well-being 00:15:18 - Ticket Options for the Summit 00:16:09 - All Access Pass Benefits 00:17:18 - Partnership Meetup 00:18:48 - Exclusive Summit Benefits 00:20:55 - Summit Evolution and Community Impact Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    23 min

  8. 03/01/2024

    Unraveling The Hormone And Microbiome Puzzle In Lichen Sclerosus

    Hey friend! I recently had the pleasure of chatting with Dr. Melissa Mauskar, a true rockstar in the world of vulvar health research. She illuminated some fascinating new findings about the hormone and microbiome landscapes in lichen sclerosus. I walked away feeling so hopeful about how this work might improve patient care down the road! 🙌 Dr. Mauskar broke down the key takeaways in an accessible way – no need for a medical degree to follow along! Whether you have lichen sclerosus yourself or treat patients, I think you'll find this chat insightful. A few highlights that caught my ear: The role of progesterone and other hormones in LS skin How treatment impacts microbiome diversity Exciting areas for future research. Dr. Mauskar's passion for patient-centered care and collaboration across specialties to move the needle is inspiring. She helped me understand how this study into hormones and the vulvar microbiome in lichen sclerosus, while small, contributes an important puzzle piece to better understanding and treating this chronic condition. Let me know what intrigued or surprised you! I always love hearing your experiences and thoughts. And if you appreciate Dr. Mauskar and other clinicians advancing vulvar health, show some love in the comments! ❤️ In this episode, you will be able to: Explore the intricate connection between hormonal balance and lichen sclerosus for a holistic understanding. Uncover the role of the microbiome in lichen sclerosus and its impact on treatment approaches. Create personalized treatment plans tailored to individual needs for more effective management of lichen sclerosus. Gain insights into providing comprehensive care for vulvar health, enhancing patient outcomes. Discover the benefits of collaboration in advancing research and care for vulvar health. My Special Guest Is Dr. Melissa Mauskar Dr. Melissa Mauskar,  an Associate Professor in the Department of Dermatology and the Department of Obstetrics and Gynecology at UT Southwestern Medical Center, is not your typical expert. She's a trailblazer in the field, serving on the board of the newly founded Vulvar Dermatoses Research Consortium and as the secretary general for the  North American branch of the International Society for the Study of Vulvovaginal Disease. With a deep commitment to patient care and a particular focus on lichen sclerosus, Dr. Mauskar's latest research delves into this condition's hormonal and microbiome aspects. Her dedication and expertise in unraveling the complexities of lichen sclerosus make her a true star in the field. The Key Moments In This Episode Are: 00:00:12 – Introduction to Lichen Sclerosis Podcast 00:02:44 – Research Project Background 00:09:36 – Study Methodology and Findings 00:12:42 – Potential Impact and Future Research 00:15:05 – Skin Hormone Levels and Implications 00:17:02 – Significance of Study Results 00:18:01 – Understanding Microbiome 00:20:35 – Treatment Approach and Microbiome 00:24:33 – Role of Yeast in Lichen Sclerosis 00:27:30 – Future Research and Hormonal Influences 00:33:30 – Recognition of Healthcare Providers 00:34:06 – Importance of Care 00:34:52 – Momentum in Menopause Research 00:35:43 – Need for Specialized Healthcare 00:36:31 – Conclusion and Call to Action The Resources Mentioned In This Episode Are: Link to the abstract for the study mentioned in the podcast: This will provide detailed information about the study conducted by Dr. Mauskar and her team, “Assessment of the Cutaneous Hormone Landscapes and Microbiomes in Vulvar Lichen Sclerosus,” allowing you to delve deeper into the findings and implications. https://pubmed.ncbi.nlm.nih.gov/38368928/ Dr. Mauskar's Instagram profile: Follow Dr. Mauskar on Instagram to stay updated on her work, research, and insights in the field of dermatology and women's health. https://www.instagram.com/melissamauskarmd/ Contact Dr. Mauskar at UT Southwestern Medical Center: If you are in the UT Southwestern area and in need of a dermatologist, reach out to Dr. Mauskar for expert care and consultation. https://utswmed.org/doctors/melissa-mauskar/ Virtual Meetup Information If you'd like to share your voice in person (virtually), join our next virtual meetup. We meet every other Saturday from 2–4 PM and 7–9 PM Eastern Standard Time. Take this opportunity to share your diagnosis story, what is and isn’t working for you, and ask a question to the group. Share your experience and heal. I have met many incredibly strong LS warriors through these meetups, and I would love for you to join our community.  Sign up HERE for notifications and updates. I cannot wait to meet you! Mentioned in this episode: Finally Get Clear Answers About LS, Menopause, and Your Treatment If you’ve ever found yourself listening to this podcast searching for answers… trying to figure out why your body feels different… why your treatment isn’t working… or whether this is menopause, lichen sclerosus, or something else entirely… You’re not alone. And more importantly— you’re not the problem. Most people with LS are left trying to piece together a care plan from short appointments, conflicting advice, and hours of searching like this. That’s exactly why we created the Wholistic Healing Summit. This free, live event (May 11–15, 2026) brings together 12+ leading specialists to help you finally connect the dots between your symptoms, your treatment, and your next steps. Inside the summit, you’ll get answers to questions like: Why does my treatment stop working? Is this LS progression… or hormonal change? What order should I actually be using my medications? How do I navigate intimacy, pain, and changing skin? And if you choose to upgrade, you’ll also get access to exclusive Q&A sessions, where you can hear real questions from people just like you… and get expert answers you’d normally wait months (and pay hundreds) for. This is where the guessing stops. 👉 Register here: https://lssupportnetwork.org/whs If you’re tired of second-guessing your care… this is your next step. P.S. If you’ve ever wished you had more time with a specialist or left an appointment with unanswered questions, the All-Access Pass gives you direct access to expert Q&As you can revisit anytime.

    38 min
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4.8
out of 5
61 Ratings

About

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

Information

  • Creator
    Kathy Ruiz-Carter
  • Years Active
    2020 - 2026
  • Episodes
    72
  • Rating
    Explicit
  • Copyright
    ℗ & © 2026 Lichen Sclerosus Podcast
  • Show Website
    Lichen Sclerosus Podcast

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