Your Brain on Mom

Aflalo Communications Inc.

Your Brain on Mom, sibling co-hosts open up about the unexpected beginning of their mother’s dementia journey — a journey that didn’t start with obvious memory loss, but with a broken ankle. What followed were strange behaviors, unexplained shifts, and subtle cognitive changes that signaled something deeper was happening. As a brother-and-sister caregiver team, we share the real-life dementia storyof how we first encountered our mom’s cognitive decline. From unusual reactions in the hospital to confusing days at home, we walk through the early signs of Alzheimer’s disease and how they can appear differently than you might expect. We also discuss the differences between dementia vs. Alzheimer’s and how confusing it is to understand the distinction.  This podcast highlights the emotional side of becoming sibling caregivers — the frustration, the gut instinct, and the bond that forms when adult children team up to care for a parent. We also share how we use humor as a survival tool, because sometimes the only way through the fear and confusion of the progression of Alzheimer’s disease is to laugh together. By telling our caregiving story, we hope to normalize the chaos, confusion, and unexpected moments that caregivers face, and to create a space where others feel seen. We explain why we decided to start this podcast — to document the earliest moments of our journey and to give a voice to other sibling caregiversnavigating similar paths. Whether you’re researching dementia vs. Alzheimer’s, searching for early signs of Alzheimer’s disease, curious about sibling caregivers, or looking for real-life dementia stories to relate to, this podcast offers a candid, relatable, and hopeful look at the very beginning of the caregiving journey. Produced by Aflalo Communications Inc. (www.aflalo.com)

  1. Sep 29

    Mom Moved. Everything Changed.

    Mom moved—and suddenly, everything changed. In this episode of Your Brain on Mom, Wendy and Barry talk about the unexpected turning point in their mother’s dementia care: a move to a different building within the same nursing home that completely changed her day-to-day experience. Before the move, Mom’s dementia-related behaviors had escalated dramatically. She was yelling and crying for hours, spending much of her time alone in her room, and the family was increasingly worried about her decline and the care she was receiving. Then came “Fight Club”—a frightening incident involving two residents in Mom’s room that ultimately led to her transfer. Wendy and Barry unpack what happened, the questions it raised about dementia care, isolation, behavioral units, family advocacy, and the use of control measures in long-term care. They also talk about a difficult conversation around levels of care and what it means to continue treating someone with dementia while respecting their wishes and quality of life. Most importantly, they talk about what happened after the move: Mom’s baseline improved, she became more engaged, and the family started seeing more of the personality, humour and spark they knew was still there. It’s a conversation about dementia caregiving, nursing home care, advocating for a parent, family dynamics, and the uncomfortable questions that come with caring for someone whose dementia is progressing—and, as always, there’s plenty of dark humour along the way.

  2. Jul 28

    What Dementia Took From Mom (Besides Her Marbles)

    What does a person lose to dementia? Sometimes it’s memory, independence, or the ability to recognize familiar things. And sometimes… it’s a phone that may or may not have ended up in the morgue. In this episode of This Is Your Brain on Mom, Wendy and Barry make a countdown of the things their mom has lost throughout her dementia journey—and some of them are definitely more unexpected than others. From patience and tolerance to her desire to wear clothes, hearing aids, glasses, stuffed animals, clothes that somehow belong to someone else, and multiple cell phones, this list is a hilarious, honest look at the everyday chaos of dementia caregiving. There are missing phones, stolen—or possibly borrowed—stuffed animals, a mysterious collection of clothing, Costco-sized quantities of junk food that somehow disappeared, and one very questionable phone-tracking adventure that led directly to a place Wendy absolutely refused to enter. But beneath the laughter are some very real parts of dementia: changes in behavior, loss of inhibition, confusion, wandering, changes in personal care, and the gradual loss of independence. Because sometimes caregiving means grieving the things a person has lost. And sometimes it means searching under a dresser for glasses while wondering how a pair of shoes got there in the first place. This Is Your Brain on Mom is a caregiving podcast about dementia, family, advocacy, sibling dynamics, and finding humor in the moments that are anything but funny. If you’re caring for a parent with dementia, navigating a nursing home or long-term care, or simply trying to find humor in the chaos of caregiving, this episode is for you. Learn more about your ad choices. Visit megaphone.fm/adchoices

    What Dementia Took From Mom (Besides Her Marbles)
5
out of 5
2 Ratings

About

Your Brain on Mom, sibling co-hosts open up about the unexpected beginning of their mother’s dementia journey — a journey that didn’t start with obvious memory loss, but with a broken ankle. What followed were strange behaviors, unexplained shifts, and subtle cognitive changes that signaled something deeper was happening. As a brother-and-sister caregiver team, we share the real-life dementia storyof how we first encountered our mom’s cognitive decline. From unusual reactions in the hospital to confusing days at home, we walk through the early signs of Alzheimer’s disease and how they can appear differently than you might expect. We also discuss the differences between dementia vs. Alzheimer’s and how confusing it is to understand the distinction.  This podcast highlights the emotional side of becoming sibling caregivers — the frustration, the gut instinct, and the bond that forms when adult children team up to care for a parent. We also share how we use humor as a survival tool, because sometimes the only way through the fear and confusion of the progression of Alzheimer’s disease is to laugh together. By telling our caregiving story, we hope to normalize the chaos, confusion, and unexpected moments that caregivers face, and to create a space where others feel seen. We explain why we decided to start this podcast — to document the earliest moments of our journey and to give a voice to other sibling caregiversnavigating similar paths. Whether you’re researching dementia vs. Alzheimer’s, searching for early signs of Alzheimer’s disease, curious about sibling caregivers, or looking for real-life dementia stories to relate to, this podcast offers a candid, relatable, and hopeful look at the very beginning of the caregiving journey. Produced by Aflalo Communications Inc. (www.aflalo.com)

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