You can listen wherever you get your podcasts or check out the fully edited transcript of our interview at the bottom of this post. In this episode of The Peaceful Parenting Podcast, I interview Jessica Slice, a disability activist and the author of Unfit Parent, a Disabled Mother Challenges an Inaccessible World. We discuss the effect of Jessica’s disability on her life and parenting, and what non-disabled parents can learn from her about parenting. Know someone who might appreciate this episode? Share it with them! 📣 And PSSST- New workshop next week- Transitions without Battles: Helping Your Child Move From One Thing to the Next without Meltdowns, Power Struggles, or Yelling- Get all the details here We talk about: * 00:00 — Intro + Jessica Slice and her book * 00:02 — Jessica’s disability story and diagnoses * 00:05 — Wheelchair, identity shift, and living as disabled * 00:06 — The disability paradox explained * 00:08 — Perfectionism, capitalism, and happiness * 00:11 — Disability culture vs. hustle culture * 00:13 — Becoming a parent unexpectedly (foster → newborn) * 00:14 — Why early parenting can be easier for disabled parents * 00:18 — Skill overlap: disability + parenting * 00:20 — Myths about disabled parenting * 00:26 — Fear of care, aging, and needing help * 00:27 — Parenting and interdependence * 00:29 — Community support and parenting * 00:30 — Letting go of control and certainty * 00:32 — Everyone needs help * 00:34 — Advice to younger parent self * 00:35 — Where to find Jessica Resources mentioned in this episode: * Yoto Screen Free Audio Book Player * The Peaceful Parenting Membership * Evelyn & Bobbie bras * Jessica’s books * Jessica’s Substack * Jessica on A Slight Change of Plans Connect with Sarah Rosensweet: * Instagram * Facebook Group * YouTube * Website * Join us on Substack * Newsletter * Book a short consult or coaching session call xx Sarah and Corey Your peaceful parenting team- click here for a free short consult or a coaching session Visit our website for free resources, podcast, coaching, membership and more! >> Please support us!!! 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No one listening or watching and they can’t go where you don’t want them to go and they aren’t watching screens. BUT they are being entertained or kept company with audio that you can buy from YOTO or create yourself on one of their blank cards. Check them out HERE Evelyn & Bobbie bras: If underwires make you want to rip your bra off by noon, Evelyn & Bobbie is for you. These bras are wire-free, ultra-soft, and seriously supportive—designed to hold you comfortably all day without pinching, poking, or constant adjusting. Check them out HERE Podcast Transcript: Sarah: Hey everyone. Welcome back to another episode of the Peaceful Parenting Podcast. Today’s guest is Jessica Slice. She is a mother, a writer, and a disability activist, and the author of Unfit Parent: A Disabled Mother Challenges an Inaccessible World. I love this book and I’ve been telling everyone about it. I highly recommend you pick up a copy. We will link to it in the show notes. Until then, have a listen to my interview with Jessica, where we talk about disability and parenting and what non-disabled parents can learn from her about parenting. Whether you are interested in learning more about disability culture, or want some new and somewhat startling answers to the question, “Why is parenting so hard?” I think you’ll have a lot to think about after listening to this episode. Let’s meet Jessica. Sarah: Hi Jessica. Welcome to the podcast. Jessica: Thanks so much for having me. Sarah: I’m so glad to have you here. If you wouldn’t mind just starting out by introducing yourself and telling us a little bit about who you are and what you do. Jessica: Of course. My name’s Jessica Slice, and I’m really happy to be here. I am an author and a speaker and just write in general about disability and perfectionism and our shared fragility. I live in Toronto with my two kids and my husband, and we have a dog named Honey Puppy, and I’m, yeah, really happy to be here. Sarah: It’s so good to have you here. So your book about parenthood and disability—I was so surprised that I know so little about disability. So maybe you could tell us about your disability and then your journey to becoming a parent. Jessica: Yeah, of course. So I became disabled at 28. And so I have this real before-and-after story, and I also feel like because I don’t have a congenital disability—or I didn’t have a disability until 28—that I have a perspective from that specific position. You know, I grew up having a body that was generally accepted, generally welcomed, that I didn’t have accommodation or accessibility issues. But when I was 28, I was on a hike. I developed heat exhaustion, and I just became extremely sick. So the day before the hike, I was active. I went for a seven-mile run. I was on vacation, and then the day after the hike, it was hard to even walk down the hallway. I just had this range of debilitating symptoms: extreme dizziness, nausea, this sense of kind of like floating above myself, unexplained fevers. My legs were going numb. And I saw doctors and, well, I assumed I just needed to recover from the heat exhaustion. But then I didn’t. And so I just started seeing doctors and no one knew what was wrong. They said maybe I was just stressed. And this went on, and I ended up not recovering ever. Like I still have many of those symptoms now. But about two years into that, I finally saw someone who diagnosed me with postural orthostatic tachycardia syndrome, or POTS, which—at that time, it was 2013 that I got diagnosed—it was not very well known. It’s better known now because it comes along with long COVID in a lot of patients, and so more people are talking about it. But then two years after that—or one year after that—my little sister developed the same symptoms that I had, and it seemed rare that two people would have this exact same sudden onset. And so our doctor at Duke sent us to a geneticist at Duke, and that geneticist diagnosed us with Ehlers-Danlos Syndrome, which is a genetic connective tissue disorder. And so that causes a lot of widespread pain, a lot of dislocations, some vascular issues—well, not as severe as certain types of EDS, but can cause POTS. And so I have, I sort of have two disabilities that are connected, and in a lot of people with EDS, they end up developing POTS. And then in 2018—so for a long time, for those first seven years I was disabled—I just sort of shrunk my life to fit my body’s needs, which I, which was okay. But I, I just didn’t go anywhere where I would need to stand or walk or be upright. And then seven years in, when my child—and I’ll, I’ll explain meeting her—but when she was one, I was like, I think I wanna go more places. And so then I got my first power wheelchair, and that made it so I could go on walks and go to stores and go to restaurants, or go to her ballet classes, or just be in the world a bit more. And so, and it was around that time that I really started identifying as disabled and not just sick. Mm-hmm. And that was a real transformation for me. It was a switch from feeling like I had this body that worked and stopped working to having a body that had switched from one identity to a different identity. What a trip that—yeah. Sarah: Yeah. Yeah. Because you had experienced life as both disabled and non-disabled, you have a particular insight into something that I, that you wrote about, which is the disability paradox. Mm-hmm. Can you talk about that? Because I think if somebody had been disabled their whole life, it might be harder for non-disabled people to believe that the disability paradox is true. But because you’ve been—no, I’m serious. Like, it is kind of funny, but because you’ve had both types—mm-hmm—of lives, can you explain what the disability paradox is and any—just any thoughts on what you think listeners should know about that? Jessica: Yeah, I mean, God, I could talk about this all day. I’ll try not to be too long-winded about it. But the disability paradox is this philosophical phenomenon where disabled people are far more satisfied with our lives than people would expect. And in fact, when you measure satisfaction, disabled people are equal to or more satisfied than non-disabled people. But that really goes against sort of our collective assumptions, which is that the very worst thing is to be disabled. You know, even from the time someone gets pregnant, you say, “Well, I don’t care if it’s a boy or girl, as long as it’s healthy.” And I don’t wanna, like, take away from how hard it is to have a sick child, but the irony is: being a disabled person doesn’t end up diminishing life satisfaction across the board. There are disabled people who don’t like their lives. There are non-disabled people who don’t like their lives. There are parts of disability that bring suffering. There a
